Warriors are you fed up, worn out and to the point where you’re stressed to no end and feeling you just can’t do it anymore? IT being anything that others maybe expecting from you or limitations that you’re expected to exceed in spite off or explaining your day to day struggles though they’re being ignored or rebuked. It is your time to step back, take a stand and say “I Just Really Can’t Do It Anymore”. It is time to think about what is best for you and how you manage to cope with Rheumatoid Arthritis and its devastation. Continue reading “RA -Explaining It-I Just Can’t Do It Anymore”→
That defeating feeling you get when you realize your medication is no longer working. That feeling that changes you from being sad to sadder forcing you to face the reality that “I’m about to go down this confusing, scary and unknown road one more time”. How will we ever get our feet on solid ground and is it possible. We’re feeling defeat one more time in a life with Rheumatoid Arthritis. Continue reading “RA-Feeling Defeated Again-When Medication Fails”→
Before you were diagnosed, did you go the doctor and was told the aches and pains you were feeling was from being overworked or just achy joints or even arthritis then told to take it easy and to take over the counter medicines. Of course that did not work so very soon you’re back at the doctor’s office again maybe they’re asking a few more questions and more examining but this time you’re given prescription medication in hopes that this time your issue will be fixed. No that doesn’t work for you either because what’s going on with you has yet to be diagnosed. Continue reading “RA-The Quest For Answers-Before The Diagnosis”→
I am the face of Rheumatoid Arthritis
I smile when all I want to do is cry
I cry when all I want to do is sleep
I can’t sleep even though I’m so tired I can’t even think
I can’t think because my mind is so confused by medication
My medication may work but it’s making me sick
I’m sick because of the side effects of all of this medication
This medication is the gateway to my fatigue
The fatigue rules me day and night leaving me drained
I’m drained and I’m unable to figure out how to make myself move
When I move I realize I’ve lost so many of my abilities
My abilities are limited and I stare into the face of guilt Guilt is with me when I get up and when I lay down loading me with depression Depression has become my constant companion and I can’t seem to leave it behind me
I try hard to leave it behind but this disease just won’t let me
It all leaves me tired, worn out, frustrated and filled with loneliness Loneliness, another one of my enemies but did I mention my pain
My pain is real and not in my head like so many has said
Many say this because they can’t see all that I feel The illusion of Rheumatoid Arthritis!
Actually there is so much more that people don’t see that we’re facing brought on by this disease. There is the lack of understanding, lack of support and our pride may never have been mentioned but that has a big place in our lives. Imagine losing your hair without warning or standing in the mirror one day combing your hair and there’s more in your comb than on your head. What about the weight gain that creeps up on you little by little or maybe it seems it happened overnight. Or it could be weight loss you’re fighting because of adverse reactions to your medication. These are just some of the things that we suffer with in silence because no one understands how much these things affect us. If only for a little while others could walk in our shoes, they would know our suffering and understand this disease so much more.
We are the faces of Rheumatoid Arthritis and we are many. We are different but we are the same. We are the brothers and sisters of a disease that pulls us together as one because we understand each other better than anyone else can. We are forever bonded together by 2 words Rheumatoid Arthritis.
If I tell you I am sick, do you believe me. If I tell you I have Rheumatoid Arthritis will you understand me. If I tell you I will always suffer with this disease are you with me and if I tell you I am chronic will you be with me!! RA the disease with so many questions and very few answers but it is chronic. Continue reading “RA- Rheumatoid Arthritis-I Am Chronic”→
I’ve lost my identity to Rheumatoid Arthritis. Yes I see myself and I may look the same but in reality I’m not the same. This disease has me asking “Who Am I” and how do I come to accept the person that disease has made me. It’s hard but I will. My Fate My Foe!! Continue reading “RA-Rheumatoid Arthritis, My Fate-My Foe”→
Words have power but for us, those words can change who we are. As sufferers of Rheumatoid Arthritis it’s not always easy for us to put our feelings into words nor is it always easy to share what we’re going through each and every day. With this comes a myriad of emotions for why this is happening to us and why we wish this should never be. Talking about our disease is never easy but being able to should never be the issue we have to deal with. Why should we have to figure out a way make those in our lives understand that our disease is a real disease and not something in our head, something made up or something exaggerated. It is a devastating life long auto immune disease that will always be a changing disease but can we keep trying to make people understand when their ears are closed, their eyes are shut and their minds are blank when it comes accepting to how this disease affects us. Continue reading “RA-Having Rheumatoid Arthritis-Listen Our Words Have Power”→