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RA AND THE FAMILY FIT

LIFE WITH RHEUMATOID ARTHRITIS

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Understanding Rheumatoid Arthritis

RA-Rheumatoid Arthritis-A Warrior’s Fight

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PAIN, FATIGUE, MISUNDERSTANDING, MEDICATION, SLEEPLESSNESS AND FOGGY BRAIN

Rheumatoid Arthritis how do I handle what you’ve done to my life
You’ve dragged me down, almost drowned me with all of your inflaming strife

Still so much to learn but you have made me wise
Changing from day-to-day so many plans to devise

Day in and day out there’s depression and so much anger
Here I am crying, tossing and turning, fearing my life is in danger

I long for peace, quiet and rest for my roving mind
My body needs a break from the constant painful grind

I’m medicated so much sometimes I can’t even think
It makes me wonder will they ever find the missing link

I’m so worn out and I’m just too darn tired
And I don’t know what to do, I feel like my body is being rewired

My fight to stay strong is a fight every day
I’m fighting when I’m up and when I’m down and in every way

Some days I want to give up but I just won’t give in
How can I give up this fight and let you win

You’ve already stolen my time, my abilities and my joy
Also my family, friends and job you aim to destroy

I tried my best to head you off from the very start
But you’ve managed to hang on in your effort to tear me apart

So where do I go and what do I do
How do I sustain with a Monster like you

I guess I will continue to fight and do what I can
To control you Rheumatoid Arthritis and hope others understand

That this battle with you is harder than word can ever express
My weary mind and battered body can surely attest

To what it’s like to fight to stay ahead
With a disease like you that I face every day with dread

Though many don’t understand and many never will
How debilitating you are and how my life you managed to steal

Finally RA, I hate you with ever fiber of my aching being
But these words to you from me should be, but they aren’t very freeing.

Rheumatoid Arthritis our debilitating disease, one that so many people do not understand and do not know how much and how often we suffer.  This is our journey.

Be Blessed.

 

 

 

 

 

 

 

 

 

 

RA-Rheumatoid Arthritis, My Fate-My Foe

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I’ve lost my identity to Rheumatoid Arthritis.  Yes I see myself and I may look the same but in reality I’m not the same.  This disease has me asking “Who Am I” and how do I come to accept the person that disease has made me.  It’s hard but I will.  My Fate My Foe!! Continue reading “RA-Rheumatoid Arthritis, My Fate-My Foe”

RA-Having Rheumatoid Arthritis-Listen Our Words Have Power

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Words have power but for us, those words can change who we are. As sufferers of Rheumatoid Arthritis it’s not always easy for us to put our feelings into words nor is it always easy to share what we’re going through each and every day. With this comes a myriad of emotions for why this is happening to us and why we wish this should never be.  Talking about our disease is never easy but being able to should never be the issue we have to deal with.  Why should we have to figure out a way make those in our lives understand that our disease is a real disease and not something in our head, something made up or something exaggerated.  It is a devastating life long auto immune disease that will always be a changing disease but can we keep trying to make people understand when their ears are closed, their eyes are shut and their minds are blank when it comes accepting to how this disease affects us. Continue reading “RA-Having Rheumatoid Arthritis-Listen Our Words Have Power”

RA-Rheumatoid Arthritis-You Don’t Know

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Feeling the pain and fatigue, what do you do! What can you do! Does anyone really understand what it’s like to be a prisoner to a disease that will never let you go.  That disease, Rheumatoid Arthritis.

Take a look at us, we all have different looks.  Some of us look perfectly normal, some of us semi normal, some of us have deformities, some of with canes and walkers, some of us in wheelchairs and some of us even bedridden, so our looks with this disease comes with many faces.  Faces in pain, faces with tear stains, faces with fake smiles, faces of frustration, faces showing fatigue, faces of confusion, faces of loneliness and faces of hope.  There can be so much misunderstanding about what we should look like when we have a chronic disease but our faces may not tell our true story.

Do people really get that for many of us we may not have the physical disabilities but we are suffering with the aches and pains in our joints that leaves us bound to a life with painful movement causing us to stay in one place more than we want to.  Simply because our looks can be deceiving, we end up facing enormous backlash from those who tend to believe we are liars looking for sympathy playing games with an awful illness.  In reality seeing who we are may not show what we are “a person living in pain each and every day”.  A pain that cannot be measured in numbers because the levels sometimes don’t go that high.  A pain that you can’t describe because it’s not like anything you’ve felt before.  A pain that scares you so much but you’re even more afraid to share with those in your life because they just won’t understand or they might be afraid they’re losing you. This is what Rheumatoid Arthritis does to its victims. You just don’t know.

Is it understood what kind of sadness and depression we face daily because our abilities have been stolen from us.  Does anyone understand what it’s like being unable to live a normal life.  A life born to live to its highest but can be taken to its lowest by this disease we have, Rheumatoid Arthritis. We never knew we would be trying so hard to put one foot in front of the other while trying to figure out where that would lead us.  We know where we want to go and what we want to do but so many of our wants have been slowly ripped out of our lives.  The few times we may get lucky enough to do some of these things, we pay the price for it later.  Our bodies cry out in pain as we cry along with it.  We cry because we are happy we were lucky enough to do something we wanted but sad and angry because this is what our lives have come too.  Being unable to do simple things bring more pain because if you can’t do simple things then the harder things are simply a hope or a wish.  You just don’t know.

When people see us cry and ask why, it’s because we are so overwhelmed with everything that we’re going through.  Do they think we’re feeling sorry for ourselves, maybe we are sometimes, we are entitled.  The burden we carry each and every day is heavy and at some point we are bound to break.  The depression is real, the loneliness is epic, the isolation finds us hiding in rooms alone because explaining our tears so many times fall on unsympathetic and deaf ears.  People wonder why we fight this disease alone, it’s because many don’t understand it and don’t want to.  It’s not the crippling disease they’ve come to know, so for those who look okay to them, it’s a question of “what’s your problem”.  We all find ourselves alone sometimes dealing with this disease trying to figure out how best to function within and outside of our family.  We never want to be alone in this battle but we are and it’s no fault of our own.  Loneliness and isolation, You just don’t know.

Rheumatoid Arthritis, what is it?  Our definition: deceiving, devastating, unpredictable, uncertain,  forever changing, damaging, unrelenting, most hated, debilitating, life altering and most misunderstood.  True definition:  a chronic autoimmune disease in which the body’s immune system which normally protects its health is by attacking foreign substances mistakenly attacks the joints.  This is not a simple disease or temporary disease and it is not arthritis but one takes control of our lives and leads us down its path that it has for us.  Now we hope that you know and understand our journey just a little bit better.

Be Blessed.

 

RA-Because My Disease Maybe Invisible-Does It Make My Suffering Invisible

 

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When you see me, my fingers straight, I don’t limp, I don’t have the assistance of a cane nor am I in a wheel chair, so tell me what do you think.  Do I look perfectly normal to you!  Do I look as if I can do what any normal person should be able to do!  Well I can’t, you see my disease may be invisible but what I’m going through is real and just because you don’t see it doesn’t make it untrue.  Yes I may look healthy but I am truly suffering because you see my disease Rheumatoid Arthritis can’t be clearly seen. Continue reading “RA-Because My Disease Maybe Invisible-Does It Make My Suffering Invisible”

RA- I Have Rheumatoid Arthritis.

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When you look in my eyes what do you see
The light has dimmed, Rheumatoid Arthritis has taken over me

I have a disease with a confusing name
One that no one understands, no matter how much I try to explain

My life with RA is so completely Misunderstood
If I could explain it to you better, I surely would

If everyone would accept this is now how I have to live
Then their support and understanding they would freely give

It’s a life that I live because I have no choice
As loud as I speak and cry, I still have no voice

It has affected each and every part of my life
Yes, it is hard, so much toil and strife

Who I once was and who I am now
Is forever changed and I’m still trying to accept it but how

I want to go back to the way I use to be
But this dreadful disease just will not let me

Still I look in the mirror and I stare at myself
I ask what can I do, Lord what else

I’m doing all that I can to be at my best
Still it’s hard for me to relax and get needed rest

I hate you RA and what you have done
You have taken my life and made a run

You left me tired, worn and forever in pain
And struggling to accept that my life will never, ever be the same

I will always long to be free from this terrible disease
Because all I want is Understanding, Peace, Rest and to be at Ease.

From all of us suffering from Rheumatoid Arthritis, a disease that is so misunderstood.

Be Blessed.

photo credit:  kapa65/pixabay.com

 

 

 

 

RA-How Can I Explain Rheumatoid Arthritis

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HOW CAN I EXPLAIN

How can I explain a life led by Rheumatoid Arthritis.  Do I do what I want, can I go when I want OR are these the things that only this disease decide.  Silly question, No it is not, so let me try to explain to you why. I can’t hide from it or put it behind me no matter how much I want to. I hate this disease and trying to explain it can be just as painful as the disease itself.  Living it is my best Explanation!!! Continue reading “RA-How Can I Explain Rheumatoid Arthritis”

RA-The True Definition Of A Disease Unknown

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How do we fix it remains a mystery, how to control it remains a guess and how to cure it remains unknown.  The true definition of a disease unknown.  Living a life with so much uncertainty is what we all know as sufferers of Rheumatoid Arthritis. Continue reading “RA-The True Definition Of A Disease Unknown”

RA -Never In A Million Years Did We Think We Would Get Rheumatoid Arthritis

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NEVER

Never In A Million Years did we think we would get Rheumatoid Arthritis but we did.  Never in a million years could we have guessed the pain and fatigue would be so bad but it is and Never in a million years did we think people wouldn’t understand this disease but many don’t.  We’ve learned to live with it but we will never get used to it, Never In A Million Years. Continue reading “RA -Never In A Million Years Did We Think We Would Get Rheumatoid Arthritis”

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