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RA AND THE FAMILY FIT

LIFE WITH RHEUMATOID ARTHRITIS

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Support and Rheumatiod Arthritis

RA-Rheumatoid Arthritis, My Fate-My Foe

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I’ve lost my identity to Rheumatoid Arthritis.  Yes I see myself and I may look the same but in reality I’m not the same.  This disease has me asking “Who Am I” and how do I come to accept the person that disease has made me.  It’s hard but I will.  My Fate My Foe!! Continue reading “RA-Rheumatoid Arthritis, My Fate-My Foe”

RA – Rheumatoid Arthritis-I Just Didn’t Know

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When I was diagnosed with Rheumatoid Arthritis, I didn’t know my life would change the way that it has, still there was so much more about this disease that I just did not know.  Each day that I suffer, I learn just a little bit more but never learning all that there is to know about a disease that needs more light shown on it in order to make better progress for those of us who has to live this life. Continue reading “RA – Rheumatoid Arthritis-I Just Didn’t Know”

RA-How Does It Feel To Have Rheumatoid Arthritis

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How does it feel to have Rheumatoid Arthritis?  Do you feel overwhelmed, broken, tired, alone, misunderstood, helpless or just plan unhealthy?  How does it feel to be someone who has Rheumatoid Arthritis, a chronic and confusing disease that will rule your life until the end. It is a feeling that no one should ever have to feel. Continue reading “RA-How Does It Feel To Have Rheumatoid Arthritis”

RA-Are You Carrying The Burden of Blame For Having Rheumatoid Arthritis

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WE ARE NOT TO BLAME

Life changes for many reasons, it’s how those changes are handled that determines the outcome.  For each of us Rheumatoid Arthritis has brought tremendous change into our lives and with it our ongoing battle to know just what to do to make those changes easier. With Rheumatoid Arthritis our lives as we knew it is gone, changed forever.  With those changes have come loss physically and mentally with us and those we love.  Are you blaming yourself? Continue reading “RA-Are You Carrying The Burden of Blame For Having Rheumatoid Arthritis”

RA – Rheumatoid Arthritis-The Anger Inside

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Angry, who are you angry at, have you thought much about that? Those that fail to understand your circumstances. ( Maybe angry is a little harsh in this instance). Are you angry that Rheumatoid Arthritis has come into your life and changed it forever?  How about sitting alone thinking about Rheumatoid Arthritis and how it has taken over your life while also realizing this is your cross to bear maybe with help or maybe alone.  Do you think about that a lot?  Do you sit and think how your life has become one that’s filled with pain, loneliness and uncertainty?  How do you handle it!  I myself thankfully blog, putting my thoughts in print for all of us.  You see what I’m feeling isn’t just about me, it is something that I’m sure all of you are feeling as well.  Are you as angry at this disease as I am for entering my life?  Anger that has built up over time just as it has changed our lives over time but it is something we cannot change and have to live with. Continue reading “RA – Rheumatoid Arthritis-The Anger Inside”

RA – Are You Blamed For What This Disease Is Causing You Or Is This Causing A Breakdown With Those You Love

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WE ARE BLAMELESS

Having this disease is very, very difficult for us and that means all of us.  It is a disease that is forever causing changes in our lives.  So never should we be blamed for all that is happening to us. It is the fault of one thing Rheumatoid Arthritis.  Is it causing a breakdown in the family or with those you know and love!! Continue reading “RA – Are You Blamed For What This Disease Is Causing You Or Is This Causing A Breakdown With Those You Love”

RA -Rheumatoid Arthritis -Being Aware-Bridging Our Gap

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Rheumatoid Arthritis, being Aware, oh yes we already know, Awareness is ours and here’s how we’ll tell you so;

Our pain is real and never fake, No matter what others think, it’s often more than we can take;

With each day we wake it may bring tears to our eyes, Can you hear us as we reach out, Please hear our cries;

We all are suffering day in and day out, Why can’t they understand what Rheumatoid Arthritis is really all about;

When we say we need you just to help us through each day, Why do you stare at us in this non-believing way;

Our pain is vicious taking over all that we know, Why can’t they understand this no matter how we’ve tried to tell them so;

Life with this disease is hard like you’ve always been told, Even through our weakness while fighting to be bold;

We fight when we rise until we lay down, Never feeling we’ve gained solid ground;

Yes, we want and crave just a little of our old life, But that has not been without such toll and strife;

So when we tell you RA takes more than we can give, Know that it is wrecking havoc on this life we now have to live;

Also, know without a doubt all we say is true! Love, Understanding and Support is what we need from you;

One more thing you should definitely know, What Rheumatoid Arthritis really is and with that a little more understanding as we go;

By the way, our life with this disease is no longer our own, And this my family and friends you all should have already known;

It is because pain came in and did a number on us, That once old me is gone, now getting used to the new me is truly a must;

Pain is our beginning and it is our end, Do We fight hard, Yes we do in hopes it won’t win;

But no matter what, it always seems to tear us apart, As we try harder and harder to pull through to be like it was long before the start;

Living with RA is something we truly, truly hate, But for you to understand it is never too late;

We’re walking this journey tired, broken and filled with pain, Battling all of this as we try our best to maintain;

Rheumatoid Arthritis is not even close to being our friend, Even though it will be with us until the very end.

Rheumatoid Arthritis is an auto immune disease characterized by chronic inflammation of joints and it can involve inflammation of tissues in other areas of the body i.e. the lungs, eyes and the heart.  It can affect multiple organs of the body.  This is our disease.

 

Dedicated to my fellow warriors!

Be Blessed

Photo credit:  OpenclipartVector/pixabay.com

RA – Rheumatoid Arthritis The Financial Burden – The Other Side Of This Disease – Fighting To Be Free

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Having Rheumatoid Arthritis we know is devastating but the financial burden of it can also be devastating.  The quiet truth of how so many suffer through the financial burden of trying to reach a bearable goal of living without pain and it’s no fault of our own.

As I blogged before, we are forever going through changes, constantly changing medications trying to get the right fix for ourselves.  The fix that will allow us to live a life that is as bearable as possible is what we are aiming for BUT at what cost.  A cost medically we can’t afford to ignore.

Medications we know we need.  Our lives are filled with doctor appointments, to your rheumatologist or primary care physician but then there maybe physical therapy that is needed or a specialist or two.  With those visits comes the co-pays and maybe co-pays for medications that you may need.  You see sometimes we have more than we can keep up with.  Should I also mention the special supplies we may need along the way to help with our care, to help with relief from pain or maybe with straightening of our joints or just to get around at all.  These are all part of what makes our lives possible. These are the things needed to combat this disease.  This is why we may suffer the financial consequences for our abilities to do more for ourselves.

Still the list goes on. Now there’s the unexpected financial burden that hits us all.  It may hit some some harder than others. For some there is a need for special services i.e. mri, cat scans to name a couple which can lead to surgery.  Unplanned surgeries on our hips, shoulders, feet, knees or hands.  The out-of-pocket expenses that comes with hospital stays and surgeries can be astronomical. It can be really difficult and stressful just knowing this but when you have no insurance, limited insurance and even when you are fully insured it still takes its toll. So much to undertake and too much to deal with as we watch those expected and unexpected expenses grow all while fighting this terrible disease.  All while fighting to make our lives better through this whole process.

The unfortunate thing is so many are forced to forfeit proper care or care at all because of limited finances which is more than just saying it’s unfair.  With this disease, no one can afford not to get care due to the terrible effects of being left untreated.  Everyone deserves the best, so as it stands, we also bear the burden of coping with this dreadful disease while dealing with the financial responsibility of this dreadful disease.

We should not have to put aside our health because we cannot afford to take care of it nor should we have to worry about what the cost of being pain-free will be either. It is what we work so hard for and that is being pain-free.  But being financially free for some of us is a goal that’s almost as unreachable as being forever pain-free.

Are you worried about and thinking about the debt this disease is causing you and leaving you in?  Just one more awful part of Rheumatoid Arthritis, a part that isn’t seen by most (like our disease in some instances) but is still very much a part of who we are.

Be Blessed

photo credit: petelinforth/pixabay

                     diamondmack

RA – Rheumatoid Arthritis A Disease Simply Not Understood By So Many – Why

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There is an ongoing battle for understanding about Rheumatoid Arthritis and what it really is and what it mean to those of us that have it.  By definition it is described as an auto immune disease that causes pain, stiffness, swelling and loss of function to joints. Um, but those symptoms sound like regular arthritis or osteoarthritis.  Well the key difference here is “auto immune disease”. Continue reading “RA – Rheumatoid Arthritis A Disease Simply Not Understood By So Many – Why”

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