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RA AND THE FAMILY FIT

LIFE WITH RHEUMATOID ARTHRITIS

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Support and Rheumatiod Arthritis

RA-The Illusion of Rheumatoid Arthritis-Our Disease

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I am the face of Rheumatoid Arthritis
I smile when all I want to do is cry
I cry when all I want to do is sleep
I can’t sleep even though I’m so tired I can’t even think
I can’t think because my mind is so confused by medication
My medication may work but it’s making me sick
I’m sick because of the side effects of all of this medication
This medication is the gateway to my fatigue
The fatigue rules me day and night leaving me drained
I’m drained and I’m unable to figure out how to make myself move
When I move I realize I’ve lost so many of my abilities
My abilities are limited and I stare into the face of guilt
Guilt is with me when I get up and when I lay down loading me with depression
Depression has become my constant companion and I can’t seem to leave it behind me
I try hard to leave it behind but this disease just won’t let me
It all leaves me tired, worn out, frustrated and filled with loneliness
Loneliness, another one of my enemies but did I mention my pain
My pain is real and not in my head like so many has said
Many say this because they can’t see all that I feel
The illusion of Rheumatoid Arthritis!

Actually there is so much more that people don’t see that we’re facing brought on by this disease. There is the lack of understanding, lack of support and our pride may never have been mentioned but that has a big place in our lives. Imagine losing your hair without warning or standing in the mirror one day combing your hair and there’s more in your comb than on your head. What about the weight gain that creeps up on you little by little or maybe it seems it happened overnight. Or it could be weight loss you’re fighting because of adverse reactions to your medication. These are just some of the things that we suffer with in silence because no one understands how much these things affect us. If only for a little while others could walk in our shoes, they would know our suffering and understand this disease so much more.

We are the faces of Rheumatoid Arthritis and we are many. We are different but we are the same. We are the brothers and sisters of a disease that pulls us together as one because we understand each other better than anyone else can. We are forever bonded together by 2 words Rheumatoid Arthritis.

Be Blessed.

RA-Rheumatoid Arthritis-The Words That Bind

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Rheumatoid Arthritis, an autoimmune disorder that occurs when your immune system mistakenly attacks your own body’s tissues including your organs and joints.  Let me tell you a little bit about this most Misunderstood Disease. Let me share with you the words that bind our lives together. Continue reading “RA-Rheumatoid Arthritis-The Words That Bind”

RA-Rheumatoid Arthritis, My Fate-My Foe

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I’ve lost my identity to Rheumatoid Arthritis.  Yes I see myself and I may look the same but in reality I’m not the same.  This disease has me asking “Who Am I” and how do I come to accept the person that disease has made me.  It’s hard but I will.  My Fate My Foe!! Continue reading “RA-Rheumatoid Arthritis, My Fate-My Foe”

RA – Rheumatoid Arthritis-I Just Didn’t Know

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When I was diagnosed with Rheumatoid Arthritis, I didn’t know my life would change the way that it has, still there was so much more about this disease that I just did not know.  Each day that I suffer, I learn just a little bit more but never learning all that there is to know about a disease that needs more light shown on it in order to make better progress for those of us who has to live this life. Continue reading “RA – Rheumatoid Arthritis-I Just Didn’t Know”

RA-How Does It Feel To Have Rheumatoid Arthritis

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How does it feel to have Rheumatoid Arthritis?  Do you feel overwhelmed, broken, tired, alone, misunderstood, helpless or just plan unhealthy?  How does it feel to be someone who has Rheumatoid Arthritis, a chronic and confusing disease that will rule your life until the end. It is a feeling that no one should ever have to feel. Continue reading “RA-How Does It Feel To Have Rheumatoid Arthritis”

RA-Are You Carrying The Burden of Blame For Having Rheumatoid Arthritis

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WE ARE NOT TO BLAME

Life changes for many reasons, it’s how those changes are handled that determines the outcome.  For each of us Rheumatoid Arthritis has brought tremendous change into our lives and with it our ongoing battle to know just what to do to make those changes easier. With Rheumatoid Arthritis our lives as we knew it is gone, changed forever.  With those changes have come loss physically and mentally with us and those we love.  Are you blaming yourself? Continue reading “RA-Are You Carrying The Burden of Blame For Having Rheumatoid Arthritis”

RA – Rheumatoid Arthritis-The Anger Inside

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Angry, who are you angry at, have you thought much about that? Those that fail to understand your circumstances. ( Maybe angry is a little harsh in this instance). Are you angry that Rheumatoid Arthritis has come into your life and changed it forever?  How about sitting alone thinking about Rheumatoid Arthritis and how it has taken over your life while also realizing this is your cross to bear maybe with help or maybe alone.  Do you think about that a lot?  Do you sit and think how your life has become one that’s filled with pain, loneliness and uncertainty?  How do you handle it!  I myself thankfully blog, putting my thoughts in print for all of us.  You see what I’m feeling isn’t just about me, it is something that I’m sure all of you are feeling as well.  Are you as angry at this disease as I am for entering my life?  Anger that has built up over time just as it has changed our lives over time but it is something we cannot change and have to live with. Continue reading “RA – Rheumatoid Arthritis-The Anger Inside”

RA – Are You Blamed For What This Disease Is Causing You Or Is This Causing A Breakdown With Those You Love

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WE ARE BLAMELESS

Having this disease is very, very difficult for us and that means all of us.  It is a disease that is forever causing changes in our lives.  So never should we be blamed for all that is happening to us. It is the fault of one thing Rheumatoid Arthritis.  Is it causing a breakdown in the family or with those you know and love!! Continue reading “RA – Are You Blamed For What This Disease Is Causing You Or Is This Causing A Breakdown With Those You Love”

RA -Rheumatoid Arthritis -Being Aware-Bridging Our Gap

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Rheumatoid Arthritis, being Aware, oh yes we already know, Awareness is ours and here’s how we’ll tell you so;

Our pain is real and never fake, No matter what others think, it’s often more than we can take;

With each day we wake it may bring tears to our eyes, Can you hear us as we reach out, Please hear our cries;

We all are suffering day in and day out, Why can’t they understand what Rheumatoid Arthritis is really all about;

When we say we need you just to help us through each day, Why do you stare at us in this non-believing way;

Our pain is vicious taking over all that we know, Why can’t they understand this no matter how we’ve tried to tell them so;

Life with this disease is hard like you’ve always been told, Even through our weakness while fighting to be bold;

We fight when we rise until we lay down, Never feeling we’ve gained solid ground;

Yes, we want and crave just a little of our old life, But that has not been without such toll and strife;

So when we tell you RA takes more than we can give, Know that it is wrecking havoc on this life we now have to live;

Also, know without a doubt all we say is true! Love, Understanding and Support is what we need from you;

One more thing you should definitely know, What Rheumatoid Arthritis really is and with that a little more understanding as we go;

By the way, our life with this disease is no longer our own, And this my family and friends you all should have already known;

It is because pain came in and did a number on us, That once old me is gone, now getting used to the new me is truly a must;

Pain is our beginning and it is our end, Do We fight hard, Yes we do in hopes it won’t win;

But no matter what, it always seems to tear us apart, As we try harder and harder to pull through to be like it was long before the start;

Living with RA is something we truly, truly hate, But for you to understand it is never too late;

We’re walking this journey tired, broken and filled with pain, Battling all of this as we try our best to maintain;

Rheumatoid Arthritis is not even close to being our friend, Even though it will be with us until the very end.

Rheumatoid Arthritis is an auto immune disease characterized by chronic inflammation of joints and it can involve inflammation of tissues in other areas of the body i.e. the lungs, eyes and the heart.  It can affect multiple organs of the body.  This is our disease.

 

Dedicated to my fellow warriors!

Be Blessed

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