I am sick with a chronic disease known as Rheumatoid Arthritis and I must say it should be known as Rheumatoid Disease. It is a life altering, life long disease which means I will always be sick. I will always have difficult days which can vary from day to day. This is what my life is like with RA, so I ask “Am I A Burden To You or Am I Becoming One”.Continue reading “RA-Is Rheumatoid Arthritis Making Me A Burden To You”→
When you look in the mirror at yourself, what do you think. Are you thinking Rheumatoid Arthritis has really changed the way that I look. Are you seeing a different person staring back at you? Do you notice your hair has gotten thinner or maybe your skin seems dry or maybe your face is puffier than before or even your teeth are being battered since you’ve been on medication to fight this disease. Do you just stare at yourself with a sense of sadness and loss because gone is that familiar face that once looked back at you before RA came into your life and took away that old you. Yes we all are missing a part of us that we wish we could have back. That old familiarity. Continue reading “Rheumatoid Arthritis-What Do You See”→
There is an ongoing battle for understanding about Rheumatoid Arthritis and what it really is and what it mean to those of us that have it. By definition it is described as an auto immune disease that causes pain, stiffness, swelling and loss of function to joints. Um, but those symptoms sound like regular arthritis or osteoarthritis. Well the key difference here is “auto immune disease”.Continue reading “RA – Rheumatoid Arthritis A Disease Simply Not Understood By So Many – Why”→
Rheumatoid Arthritis, our chronic and complicated disease. With it comes pain that we feel each and every day. Pain that fights us as vigorously as we fight it. Still explaining just how much this causes us seem to go unaccepted and misunderstood by so many causing us to fall into a pit of ISOLATION. Do you find yourself saying “I feel so alone in this fight” and you have no where or no one to turn to. This is what so many sufferers of RA have to face, the isolation that comes with having this dreaded disease. Continue reading “Rheumatoid Arthritis-The Isolation We Face”→
Hearing those painful words with fear and sadness came with hearing “You Have Rheumatoid Arthritis”. These two words would change our lives forever but we just did not know how much. Words that had more power than we thought at the time possible But this was just the beginning of our of saga with Rheumatoid Arthritis. Continue reading “Rheumatoid Arthritis-Our Incurable Disease”→
Rheumatoid Arthritis takes us through a myriad of changes that are physical and mental. We never know from one day to the next what to expect being a sufferer of this disease because any single day may never be the same and the other. Having it makes us vulnerable to the devastation it causes and we know we have to suffer through whatever it throws at us. This realization brings tears that many may never, ever see because for many of us our tears are shed in secret. When our tears are seen, there are those who question Why!
When I cry, I wish I could go back to life before Rheumatoid Arthritis
When I cry, I long for what I can no longer do
When I cry, I feel the pain in my body and my mind
When I cry, I feel I’ve lost myself to Rheumatoid Arthritis
When I cry, I want others to Understand the burden I bear
When I cry, It’s because it is all that I can do
When I cry, I’m so emotionally broken
When I cry, I want others to understand why I cry
When I cry, I need loving arms to hold me
When I cry, I want this disease to be UNDERSTOOD
When I cry, IT’S NOT ALWAYS FOR MYSELF!!
Through the emotional turmoil we face and the tears that come, we have to accept the reality that our lives are forever changed. We see how we truly are and what this disease has done and can do to us. We cry for hope, understanding, love and comfort. This is Why We Cry.
Your head is pounding, your joints are aching, your stomach hurts, your chest is tight, you’re feeling tired and confused, why, all because it’s medication day and you’re dealing with the terrible side effects from the medication you hate you have to take. All you want to do is lie down but even that doesn’t bring the relief you’re craving. No one knows just how hard it is to live a life with Rheumatoid Arthritis and suffer from the effects of the medication given to make you better. Continue reading “RA-Dealing With The Effects of Our Medication”→