Your head is pounding, your joints are aching, your stomach hurts, your chest is tight, you’re feeling tired and confused, why, all because it’s medication day and you’re dealing with the terrible side effects from the medication you hate you have to take. All you want to do is lie down but even that doesn’t bring the relief you’re craving. No one knows just how hard it is to live a life with Rheumatoid Arthritis and suffer from the effects of the medication given to make you better. Continue reading “RA-Dealing With The Effects of Our Medication”
Rheumatoid Arthritis, how do we explain it, how do we handle it and how do we cope with it. This dreadful disease that has become a part of our daily lives, our daily being and daily everything. So how do we cope with Rheumatoid Arthritis, even we can’t always explain it and find it difficult to live with. Continue reading “RA-Our Long Journey To Mental Healing When Physical Healing Is Such A Struggle”
That defeating feeling you get when you realize your medication is no longer working. That feeling that changes you from being sad to sadder forcing you to face the reality that “I’m about to go down this confusing, scary and unknown road one more time”. How will we ever get our feet on solid ground and is it possible. We’re feeling defeat one more time in a life with Rheumatoid Arthritis. Continue reading “RA-Feeling Defeated Again-When Medication Fails”
Are you tired, worn out and feel you just don’t know what to do anymore because you’re dealing with your ever changing life brought on by Rheumatoid Arthritis. Yes, we all feel this way because it is a disease that is overwhelming and forever changing. Continue reading “RA- The Ongoing Changes Of Rheumatoid Arthritis”
Before you were diagnosed, did you go the doctor and was told the aches and pains you were feeling was from being overworked or just achy joints or even arthritis then told to take it easy and to take over the counter medicines. Of course that did not work so very soon you’re back at the doctor’s office again maybe they’re asking a few more questions and more examining but this time you’re given prescription medication in hopes that this time your issue will be fixed. No that doesn’t work for you either because what’s going on with you has yet to be diagnosed. Continue reading “RA-The Quest For Answers-Before The Diagnosis”
I am the face of Rheumatoid Arthritis
I smile when all I want to do is cry
I cry when all I want to do is sleep
I can’t sleep even though I’m so tired I can’t even think
I can’t think because my mind is so confused by medication
My medication may work but it’s making me sick
I’m sick because of the side effects of all of this medication
This medication is the gateway to my fatigue
The fatigue rules me day and night leaving me drained
I’m drained and I’m unable to figure out how to make myself move
When I move I realize I’ve lost so many of my abilities
My abilities are limited and I stare into the face of guilt
Guilt is with me when I get up and when I lay down loading me with depression
Depression has become my constant companion and I can’t seem to leave it behind me
I try hard to leave it behind but this disease just won’t let me
It all leaves me tired, worn out, frustrated and filled with loneliness
Loneliness, another one of my enemies but did I mention my pain
My pain is real and not in my head like so many has said
Many say this because they can’t see all that I feel
The illusion of Rheumatoid Arthritis!
Actually there is so much more that people don’t see that we’re facing brought on by this disease. There is the lack of understanding, lack of support and our pride may never have been mentioned but that has a big place in our lives. Imagine losing your hair without warning or standing in the mirror one day combing your hair and there’s more in your comb than on your head. What about the weight gain that creeps up on you little by little or maybe it seems it happened overnight. Or it could be weight loss you’re fighting because of adverse reactions to your medication. These are just some of the things that we suffer with in silence because no one understands how much these things affect us. If only for a little while others could walk in our shoes, they would know our suffering and understand this disease so much more.
We are the faces of Rheumatoid Arthritis and we are many. We are different but we are the same. We are the brothers and sisters of a disease that pulls us together as one because we understand each other better than anyone else can. We are forever bonded together by 2 words Rheumatoid Arthritis.
Rheumatoid Arthritis, an autoimmune disorder that occurs when your immune system mistakenly attacks your own body’s tissues including your organs and joints. Let me tell you a little bit about this most Misunderstood Disease. Let me share with you the words that bind our lives together. Continue reading “RA-Rheumatoid Arthritis-The Words That Bind”
If I tell you I am sick, do you believe me. If I tell you I have Rheumatoid Arthritis will you understand me. If I tell you I will always suffer with this disease are you with me and if I tell you I am chronic will you be with me!! RA the disease with so many questions and very few answers but it is chronic. Continue reading “RA- Rheumatoid Arthritis-I Am Chronic”
You wake up if you have the luxury of sleeping at all, try your best to get your day going but there is something holding you down, Fatigue. That thing that’s weighing on you like a ton of bricks, that thing that’s sucking your energy from you from your head to your toes. You can’t move no matter how hard you try, no matter how hard you will your body to get up and go. The bed at this time is your ally. You lay in it when you can’t move or when you reach for it for support when you stumble back as you try to stand up but find that you just can’t. Our fatigue is not just being tired, it is being exhausted. It is a feeling you can’t explain to others to make them understand. Fatigue, yes we’re all so familiar with it.
You try your best to move through the exhaustion but it’s much harder than you ever imagined. You wonder when did this all began. Finally you realize this disease Rheumatoid Arthritis snuck it in on you before you knew what happened. You see, standing at the sink brushing your teeth became a chore and that should be a simple thing to do. You stare at yourself in disbelief wondering is this really real and that body in the mirror staring back lets you know, yes you are that person so worn out and exhausted. Sleep isn’t the answer, resting isn’t the answer nor is relaxing the answer. Our body is fighting us and we just have to wait for it to fix itself even if it takes a long time or if ever. Fatigue runs rampant with this disease that we are fighting and living with.
We’re fighting fatigue and that battle is a hard one. It doubles the torture we face daily with Rheumatoid Arthritis. Through the pain we have to deal with comes the fatigue that is brought on by our meds and our bodies trying to protect us. We are grounded by these 2 more than anyone will ever really know. No one can imagine trying to carry on a day struggling against pain while not having the strength to do so. It does no good to wish for a work day or day to end and our night to begin because sleep is not the cure for our enemy Fatigue. The thing that wrings our bodies dry.
How does it feel to be too exhausted to think, I’m sure no one can imagine that. You really won’t know the answer to that unless you felt it, unless your walk has been in one of our shoes. You can barely move and you certainly can’t get your mind to focus to make yourself move so there it is, your whole body controlled by fatigue. It is awful to feel that you are useless because of a body that just can’t do what you want. All of this makes you feel guilty towards yourself and those in your life. Does this sound extreme!! Maybe to some but this is no exaggeration. Getting up and to have to lay back down in exhaustion is a cry that we cry many days. It is something that is a struggle at the simplest level and there’s no cure for us. We are saying yes but our bodies are saying I just cannot. So the fight to go is an ongoing fight, one that fatigue so often wins.
Fatigue: Extreme tiredness from mental or physical illness. “He/She was nearly dead with Fatigue”. Sounds familiar!!