Have I become my disease! Have I let what it has done to me affect the people and things in my life that are important to me the way it has affected me!  That is tough because having Rheumatoid Arthritis is bound to change who you are and how you are. It changes how you cope, think and respond to everything in your life, making you a symptom of a life that is filled with symptoms from a disease that is known as Rheumatoid Arthritis. A disease that has not been accepted for the damaging disease that it is. One that has us dealing with a myriad of affects that affect every aspect of our lives.Continue reading “Rheumatoid Arthritis-How Has This Disease Affected Our Lives and Tormented Us”→
Rheumatoid Arthritis, our chronic and complicated disease. With it comes pain that we feel each and every day. Pain that fights us as vigorously as we fight it. Still explaining just how much this causes us seem to go unaccepted and misunderstood by so many causing us to fall into a pit of ISOLATION. Do you find yourself saying “I feel so alone in this fight” and you have no where or no one to turn to. This is what so many sufferers of RA have to face, the isolation that comes with having this dreaded disease. Continue reading “Rheumatoid Arthritis-The Isolation We Face”→
Hearing those painful words with fear and sadness came with hearing “You Have Rheumatoid Arthritis”. These two words would change our lives forever but we just did not know how much. Words that had more power than we thought at the time possible But this was just the beginning of our of saga with Rheumatoid Arthritis. Continue reading “Rheumatoid Arthritis-Our Incurable Disease”→
Rheumatoid Arthritis takes us through a myriad of changes that are physical and mental. We never know from one day to the next what to expect being a sufferer of this disease because any single day may never be the same and the other. Having it makes us vulnerable to the devastation it causes and we know we have to suffer through whatever it throws at us.  This realization brings tears that many may never, ever see because for many of us our tears are shed in secret. When our tears are seen, there are those who question Why!
When I cry, I wish I could go back to life before Rheumatoid Arthritis
When I cry, I long for what I can no longer do
When I cry, I feel the pain in my body and my mind
When I cry, I feel I’ve lost myself to Rheumatoid Arthritis
When I cry, I want others to Understand the burden I bear
When I cry, It’s because it is all that I can do
When I cry, I’m so emotionally broken
When I cry, I want others to understand why I cry
When I cry, I need loving arms to hold me
When I cry, I want this disease to be UNDERSTOODÂ
When I cry, IT’S NOT ALWAYS FOR MYSELF!!
Through the emotional turmoil we face and the tears that come, we have to accept the reality that our lives are forever changed. Â We see how we truly are and what this disease has done and can do to us. Â We cry for hope, understanding, love and comfort. This is Why We Cry.
Rheumatoid Arthritis, how do we explain it, how do we handle it and how do we cope with it. This dreadful disease that has become a part of our daily lives, our daily being and daily everything. Â So how do we cope with Rheumatoid Arthritis, even we can’t always explain it and find it difficult to live with. Continue reading “RA-Our Long Journey To Mental Healing When Physical Healing Is Such A Struggle”→
Warriors are you fed up, worn out and to the point where you’re stressed to no end and feeling you just can’t do it anymore? IT being anything that others maybe expecting from you or limitations that you’re expected to exceed in spite off or explaining your day to day struggles though they’re being ignored or rebuked. It is your time to step back, take a stand and say “I Just Really Can’t Do It Anymore”. It is time to think about what is best for you and how you manage to cope with Rheumatoid Arthritis and its devastation. Continue reading “RA -Explaining It-I Just Can’t Do It Anymore”→
You wake up if you have the luxury of sleeping at all, try your best to get your day going but there is something holding you down, Fatigue. That thing that’s weighing on you like a ton of bricks, that thing that’s sucking your energy from you from your head to your toes. You can’t move no matter how hard you try, no matter how hard you will your body to get up and go. The bed at this time is your ally. You lay in it when you can’t move or when you reach for it for support when you stumble back as you try to stand up but find that you just can’t. Our fatigue is not just being tired, it is being exhausted. It is a feeling you can’t explain to others to make them understand. Fatigue, yes we’re all so familiar with it. Continue reading “RA- Fatigue The Battle Of A Life Time”→
LIFE WITH RHEUMATOID ARTHRITIS HAS NO SET RULES. IT IS FILLED WITH UNCERTAINTIES AND STRUGGLES. HOW DO WE MAKE IT IN A LIFE THAT TEETERS ON THE EDGE OF PAIN, FATIGUE AND SO MUCH MORE THAN WE EVER THOUGHT POSSIBLE!!!!Continue reading “RA – Rheumatoid Arthritis Never Forgetting”→
PAIN, FATIGUE, MISUNDERSTANDING, MEDICATION, SLEEPLESSNESS AND FOGGY BRAIN
Rheumatoid Arthritis how do I handle what you’ve done to my life
You’ve dragged me down, almost drowned me with all of your inflaming strife
Still so much to learn but you have made me wise
Changing from day-to-day so many plans to devise
Day in and day out there’s depression and so much anger
Here I am crying, tossing and turning, fearing my life is in danger
I long for peace, quiet and rest for my roving mind
My body needs a break from the constant painful grind
I’m medicated so much sometimes I can’t even think
It makes me wonder will they ever find the missing link
I’m so worn out and I’m just too darn tired
And I don’t know what to do, I feel like my body is being rewired
My fight to stay strong is a fight every day
I’m fighting when I’m up and when I’m down and in every way
Some days I want to give up but I just won’t give in
How can I give up this fight and let you win
You’ve already stolen my time, my abilities and my joy
Also my family, friends and job you aim to destroy
I tried my best to head you off from the very start
But you’ve managed to hang on in your effort to tear me apart
So where do I go and what do I do
How do I sustain with a Monster like you
I guess I will continue to fight and do what I can
To control you Rheumatoid Arthritis and hope others understand
That this battle with you is harder than word can ever express
My weary mind and battered body can surely attest
To what it’s like to fight to stay ahead
With a disease like you that I face every day with dread
Though many don’t understand and many never will
How debilitating you are and how my life you managed to steal
Finally RA, I hate you with ever fiber of my aching being
But these words to you from me should be, but they aren’t very freeing.
Rheumatoid Arthritis our debilitating disease, one that so many people do not understand and do not know how much and how often we suffer. Â This is our journey.
RA AND THE FAMILY FIT 