Warriors are you fed up, worn out and to the point where you’re stressed to no end and feeling you just can’t do it anymore? IT being anything that others maybe expecting from you or limitations that you’re expected to exceed in spite off or explaining your day to day struggles though they’re being ignored or rebuked. It is your time to step back, take a stand and say “I Just Really Can’t Do It Anymore”. It is time to think about what is best for you and how you manage to cope with Rheumatoid Arthritis and its devastation. Continue reading “RA -Explaining It-I Just Can’t Do It Anymore”→
You wake up if you have the luxury of sleeping at all, try your best to get your day going but there is something holding you down, Fatigue. That thing that’s weighing on you like a ton of bricks, that thing that’s sucking your energy from you from your head to your toes. You can’t move no matter how hard you try, no matter how hard you will your body to get up and go. The bed at this time is your ally. You lay in it when you can’t move or when you reach for it for support when you stumble back as you try to stand up but find that you just can’t. Our fatigue is not just being tired, it is being exhausted. It is a feeling you can’t explain to others to make them understand. Fatigue, yes we’re all so familiar with it.
You try your best to move through the exhaustion but it’s much harder than you ever imagined. You wonder when did this all began. Finally you realize this disease Rheumatoid Arthritis snuck it in on you before you knew what happened. You see, standing at the sink brushing your teeth became a chore and that should be a simple thing to do. You stare at yourself in disbelief wondering is this really real and that body in the mirror staring back lets you know, yes you are that person so worn out and exhausted. Sleep isn’t the answer, resting isn’t the answer nor is relaxing the answer. Our body is fighting us and we just have to wait for it to fix itself even if it takes a long time or if ever. Fatigue runs rampant with this disease that we are fighting and living with.
We’re fighting fatigue and that battle is a hard one. It doubles the torture we face daily with Rheumatoid Arthritis. Through the pain we have to deal with comes the fatigue that is brought on by our meds and our bodies trying to protect us. We are grounded by these 2 more than anyone will ever really know. No one can imagine trying to carry on a day struggling against pain while not having the strength to do so. It does no good to wish for a work day or day to end and our night to begin because sleep is not the cure for our enemy Fatigue. The thing that wrings our bodies dry.
How does it feel to be too exhausted to think, I’m sure no one can imagine that. You really won’t know the answer to that unless you felt it, unless your walk has been in one of our shoes. You can barely move and you certainly can’t get your mind to focus to make yourself move so there it is, your whole body controlled by fatigue. It is awful to feel that you are useless because of a body that just can’t do what you want. All of this makes you feel guilty towards yourself and those in your life. Does this sound extreme!! Maybe to some but this is no exaggeration. Getting up and to have to lay back down in exhaustion is a cry that we cry many days. It is something that is a struggle at the simplest level and there’s no cure for us. We are saying yes but our bodies are saying I just cannot. So the fight to go is an ongoing fight, one that fatigue so often wins.
Fatigue: Extreme tiredness from mental or physical illness. “He/She was nearly dead with Fatigue”. Sounds familiar!!
So you’re sitting down thinking about yourself not sure just what to do. Really not exactly sure what the quiet time means for you. You may feel lonely or alone with your disease and alone with your thoughts about it. It may be the quiet time that has you reflecting on what a difference life with Rheumatoid Arthritis has come to be and will be for you from this day forward.
When you see me, my fingers straight, I don’t limp, I don’t have the assistance of a cane nor am I in a wheel chair, so tell me what do you think. Do I look perfectly normal to you! Do I look as if I can do what any normal person should be able to do! Well I can’t, you see my disease may be invisible but what I’m going through is real and just because you don’t see it doesn’t make it untrue. Yes I may look healthy but I am truly suffering because you see my disease Rheumatoid Arthritis can’t be clearly seen.Continue reading “RA-Because My Disease Maybe Invisible-Does It Make My Suffering Invisible”→
When I was diagnosed with Rheumatoid Arthritis, I didn’t know my life would change the way that it has, still there was so much more about this disease that I just did not know. Each day that I suffer, I learn just a little bit more but never learning all that there is to know about a disease that needs more light shown on it in order to make better progress for those of us who has to live this life. Continue reading “RA – Rheumatoid Arthritis-I Just Didn’t Know”→
Our Life Story may have been a simple one but now it is a life interrupted by Rheumatoid Arthritis. The disease that snatched away our normalcy and replaced it with a life filled with uncertainties, frustrations and so much more. The disease that changes us while we’re watching and there’s not much we can do to stop it. Seeing how something else can control the story of your life is not what we expected but along came this terrible disease to rewrite our expectations. Our Life Story!!!Continue reading “RA -Rheumatoid Arthritis-The Life We Live”→