Search

RA AND THE FAMILY FIT

LIFE WITH RHEUMATOID ARTHRITIS

Tag

Blogs For Rheumatoid Arthritis

Living with rheumatoid arthritis

RA – Rheumatoid Arthritis-Riding The Waves Of Guilt

woman-1302674_640
FEELING THE GUILT

Guilt: A feeling of worry or unhappiness.  Something that we deal with time and time again having Rheumatoid Arthritis.  Guilt, does it make you cry your days and nights away?  How can we get someone to understand the guilt we feel when we can’t get them to understand the Disease we have!!!

Having Rheumatoid Arthritis causes us so much guilt because of the limitations brought on for the many reasons associated with it.  Guilt makes you wonder and it makes you cry tears, tears and more tears.  Guilt why does it hurt so much and why does it seem we have so many loose ends while dealing with it.  We feel guilty because we can’t do the many things that we want or need to do.  We feel we are coming up short in so many ways therefore opening the door for the multitude of guilt to walk right in.

Do you find yourself feeling so bad because you want to do all the things you should for your family but you’re unable to because you can’t force yourself to get out of bed some days.  You say to yourself “If I just lay here a little while longer” I will be okay knowing those very words are wishful thinking.  No matter what, you just can’t make yourself move no matter how much you try.  You lay quietly in bed coming to the sad realization of just how bad you are at the moment and how bad you feel because you’re failing at the things you wish so much you could fulfill.  You’re thinking how unfair this is to your family to have to go through this all the while hoping they understand it’s not your fault things are the way they are but the fault of this Disease, Rheumatoid Arthritis.

The guilt you feel can’t be measured by any means.  We are put down time and time again by our pain and our medication.  Still we’re fighting hard against the urges to just curl up in a knot and giving in to the nausea, headaches and dizziness that forbids us to make a move while it happens to us anyway.  When this happens, we are saddled with insurmountable guilt.  Guilt that weighs so heavy on us for being in a position that we have no say in that’s binding our minds in knots of emotional overload.

Through it all we want so much to be able to do things for our family and our love ones but let’s not forget ourselves.  It’s not just others that are missing out due to the effects of this disease, it is Us as well.  It is true we know this is not our fault but it doesn’t make the weight of guilt any lighter.  As we deal with not being able to do the things we want to do, the many times we want to, we are constantly hoping and praying for that distant hope of change.  It is not easy coming to terms with our limitations, still we never give in to defeat or give up trying. 

Our guilt is because we love and wish to do so we feel what we’re perceived as are failures to ourselves and others though realizing it is something that is out of our control and is an ongoing fight and will continue to be so.  Having the opportunity to do the simple things for those we love is a joy that can only be understood by those that are walking in the shoes that fit all of our feet. Though this might sound trivial to many, it is a great task for those dealing with a chronic disease.

As we live with the many emotions that having this disease brings, we are bound to it for a lifetime which means that we will forever be dealing with many emotions. But guilt and isolation have their place etched in our minds reminding us just how lonely and unforgiving Rheumatoid Arthritis can be.  If only we could rise above our feelings of guilt and accept that we are not responsible for the limitations that we now have to live with. But even knowing this does not ease the pain of the guilt we still feel.  It is hard for us to rest our minds no matter how hard we try.  We only wish for understanding of our plight.  We wish that others knew that we deal with pain more than we can say and that brings about our inability to do so many of the things we want or need to do which brings about isolation and guilt. 

Two of the things that we find just as hard to get away from as the symptoms of this disease because if the truth be told, these 2 are also symptoms in an emotional form.  It’s true we are not to blame but it’s true we feel to blame for what Rheumatoid Arthritis has taken from our lives therefore forcing its limitations upon us causing us unbearable guilt.  Guilt is not fair but it is real.

Be Blessed.

Photo credit: noskill/pixabay.com

 

RA – Getting Rheumatoid Arthritis-Is This Your Story

Seeing how something can control your life is not what we expected but along came this terrible disease to rewrite our dreams and expectations setting us on a path that will forever alter all of our expectations.

When you think back over the years before your Rheumatoid Arthritis diagnosis, do you remember where you came from to where you are now.  Tell me how do you feel!  Do you miss that old you and all that came so easy in your life before?  Yes, this is how we all got started!

A simple life maybe, but now it has been affected by a disease that has snatched away our normalcy and replaced it with uncertainties, frustrations, pain, isolation and so much more. Some things that we will never be able to get those in our lives to really understand or accept.  A disease that changes us daily as we do our best to accept and cope with our circumstances. Continue reading “RA – Getting Rheumatoid Arthritis-Is This Your Story”

RA-Finding Yourself Through Rheumatoid Arthritis With Your Limits

Fellow warriors, how are you all doing? My hope is that you’re doing alright. That being said, by having Rheumatoid Arthritis it is such a trying thing and is filled with so much uncertainty, pain and confusion. Do you ever find yourself working beyond your limit. Trying to fill in the gaps that you feel have been left because you were unable to do as much. At some point in your illness do you want to just throw up your hands because of your frustration.

Continue reading “RA-Finding Yourself Through Rheumatoid Arthritis With Your Limits”

RA-Handling Rheumatoid Arthritis Staying Strong When You Are At Your Weakest

When you find yourself in so much pain, maybe alone and not knowing what to or who to turn to at a time when you need someone the most, how do you get through this difficult time and how do you make another one of those tough episodes that you’ve become accustomed to but never use to.

Having Rheumatoid Arthritis is something that we as sufferers will never get use to having but because it has become a part of our lives causing pain, fatigue and frustration and it is something that is never the same day to day. There are days it may be manageable but days where we are barely able to move. This leaves us filled with uncertainty and our lives filled with turmoil bringing on that needed strength that many never, ever know we are forced to come by.

Rheumatoid Arthritis is a very complicated disease to say the least. It strikes us in ways that are unexpected and devastating as we suffer from short term affects as well as long term affects. Ones that put us down for days at a time or months at a time and in some cases years. But when we are doing okay in general there are those times when our bodies just can’t seem to get going because it is just overwhelmed with fatigue. Fatigue is one of our main enemies that hangs on and ravish our bodies like crazy. It lingers and wages war like pain from the moment we try getting out of bed until we fall back in bed at night and that’s if we’re lucky enough to make it out of bed at the beginning of our day. You see for us there is no simplicity to this disease. It is so complicated and so misunderstood by many and honestly we know that the understanding we need will never happen but we have to forge on in spite of that.

Finding our strength takes more than the physical. It takes every bit of mental focus that we have. Though we struggle day after day and find it hard putting one foot in front of the other, our mental strength kicks in giving us that push we often need to fall back on. Yet we are often beaten down in both aspects. This disease is so draining on us physically and mentally leaving us tied down to a life of chaos that many just don’t see. We have learned along the way to hide what we feel and struggle with only to be ignored if even it’s seen and known. We have learned what they fail to realize or opt not to accept is out of our control so we live our lives fighting for ourselves with the little strength we have.

Where do we find strength when we are at our weakest! From the depths of our being. The place that we dig deep within when there is no other place but our inner self. We are full of strength as warriors of Rheumatoid Arthritis and no one knows how strong you have to be to survive with an auto immune disease and all that comes with it. We are constantly fighting a battle that always brewing in our bodies and minds from this disease and the medication to help us so this is how we have gained strength.

Though our strength may wane, we know we can never give up. Thank you for taking the time to read my blog.

Be Blessed.

photo credit: pixabay

RA-Do You Feel You’re Defending Yourself Too Much For Having Rheumatoid Arthritis

water-lily-1592771_640

You have Rheumatoid Arthritis and many don’t even know what it is.  Well, it’s an auto immune disorder that affects so many it’s a shame that everyone don’t know what it is.  It affects the joints but other parts of the body which can include the organs.  Guess what, with all of that, it leaves us all vulnerable to emotional breakdowns as well.  So here we are, the beginning of our lives with a world of chronic everything. Continue reading “RA-Do You Feel You’re Defending Yourself Too Much For Having Rheumatoid Arthritis”

RA-Rheumatoid Arthritis and Our Trying Days


I hope this post finds each of you doing well considering what we are all going through at this time. I know this is a very trying and difficult time for those of us with RA or any other auto immune and along with the average person because our lives have been turned upside down. You see this has been one of the most difficult times I have seen in quite a while for many reasons.

While I have found that my anxiety has been truly high I have not dealt well with it on some occasions but I have found comfort in working in the yard as best I can which has caused issues with my RA. I find myself hurting more but it keeps my mind off of being shut up in the house and being afraid to go out. Getting out in the yard has been my saving grace along with prayer and reading my bible. I tell you if it weren’t for those things, my mind would be everywhere. I suffer along with the aches and pains because it gives me something else to think about and let me know that there is still some normalcy which is my RA. Sad to say but it is the truth. Umm for reality.

I guess a lot of us having Rheumatoid Arthritis finds it extra stressful because of our immune system due to our disease and our medication taking its toll and we’re worrying even more about our safety. Wondering if that trip to the store, pharmacy or doctor is a safe one. I know for me most of my appointments were canceled. I guess those that weren’t essential which I found to be okay because if they thought it was safer not to do it, then I had no problem either. I’ve finally just started venturing out a little bit and that’s only if the parking lots are almost empty and the stores are scarce. I don’t mean to be so paranoid but it is a very scary time for us all. Some people are braver than others I must say though but I hope and pray this will all end for us soon.

One last thing, I haven’t had the best of luck getting my medication, hydroxychloroquine because of what’s going on but I hope that works itself out soon but I’m sure I’m not the only one. I just hope this works out for everyone however it is suppose too. I will be trying again later this week to get my refill and see what happens at that time. In the meantime, I hope since my last post everyone is doing well and keeping safe as well as your families. I hope your RA isn’t getting the best of you in this difficult time when you might need care the most. Thanks for stopping by.

Be Blessed!





RA-Rheumatoid Arthritis-I Would If I Could

woman-1302674_640

If I could remove this disease
I would do it a breeze
If I could take back my life
I would gladly let go of this strife
I would wipe away RA
The disease that hurts me every day
I would take back my life as I knew it
Full of spunk, laughter and fit
No more daily fatigue, sadness and pain
Nor fear of the cold, damp or rain
I would be on the go without fear
Never wondering if a chair or bench was near
If I could wipe out being chronic
I would without another pill, shot, infusion or any kind of tonic
If I could end all of the painful years
It would stop the tears and the constant fears
I would chase away chronic everything
And a calmer, simpler, pain-free life I would definitely bring!
Be Blessed.

photo credit:  pixabay.com

RA-My Disease-My Doctor-Getting It Right For Me

i-love-myself-417267_640

Being sick with Rheumatoid Arthritis, our ultimate goal is to feel the best that we can. Depending on our Rheumatologist and other doctors is an important part of our care but what happens when things just don’t seem to be working out with your doctor.  Do you find yourself struggling with whether to find new one or do you stick it out for reasons that you also struggle with.  This dilemma can only add additional stress to our already stressful life.

Continue reading “RA-My Disease-My Doctor-Getting It Right For Me”

RA-Rheumatoid Arthritis-What It Really It-The Real Truth

RA and the family fit
Know Us

Rheumatoid Arthritis is a chronic inflammatory disorder that affects the joints including those in the hands and feet.  It is an auto immune disease in which the body’s immune system which normally protect its health by attacking foreign substances like bacteria and viruses mistakenly attacks the joints.  This creates inflammation that causes the tissue to thicken resulting in swelling and pain around those joints.  Most commonly affected are hands, feet, wrists, elbows, knees and ankles.  RA can also affect the body’s cardiovascular or respiratory system which is called a systemic disease.  Systemic means the entire body which can be deadly.  We as warriors believe it should be called Rheumatoid Disease to cut down on the confusion. Continue reading “RA-Rheumatoid Arthritis-What It Really It-The Real Truth”

Blog at WordPress.com.

Up ↑