Your head is pounding, your joints are aching, your stomach hurts, your chest is tight, you’re feeling tired and confused, why, all because it’s medication day and you’re dealing with the terrible side effects from the medication you hate you have to take. All you want to do is lie down but even that doesn’t bring the relief you’re craving. No one knows just how hard it is to live a life with Rheumatoid Arthritis and suffer from the effects of the medication given to make you better. Continue reading “RA-Dealing With The Effects of Our Medication”
Rheumatoid Arthritis, how do we explain it, how do we handle it and how do we cope with it. This dreadful disease that has become a part of our daily lives, our daily being and daily everything. So how do we cope with Rheumatoid Arthritis, even we can’t always explain it and find it difficult to live with. Continue reading “RA-Our Long Journey To Mental Healing When Physical Healing Is Such A Struggle”
Warriors are you fed up, worn out and to the point where you’re stressed to no end and feeling you just can’t do it anymore? IT being anything that others maybe expecting from you or limitations that you’re expected to exceed in spite off or explaining your day to day struggles though they’re being ignored or rebuked. It is your time to step back, take a stand and say “I Just Really Can’t Do It Anymore”. It is time to think about what is best for you and how you manage to cope with Rheumatoid Arthritis and its devastation. Continue reading “RA -Explaining It-I Just Can’t Do It Anymore”
You look at yourself in the mirror, you may smile or you may break down and cry. You smile because you may want to see yourself as you’ve always been but you may shed tears because you know that you’re no longer that person anymore and never will be again when it comes to doing all that you once could before Rheumatoid Arthritis came into your life. That person staring back is not the person who you once were but a silhouette of that person so you find yourself grieving for the “YOU” that’s lost to a disease that haunts you and those in your life in a way that you were never in a million years prepared for. You hug yourself in an effort to reassure yourself that everything is going to be okay but in reality you know that your life is in for a tough go and it has been forever changed and will never be okay the way it use to be. How quickly did this disease snatch your old life away and set in motion grief and guilt that weighs on you because you can’t live life the way you once could and the way you want too. Where have I gone? Continue reading “RA – Rheumatoid Arthritis-Grieving For That Old You”
Pain-Physical suffering or discomfort caused by illness. Our definition of daily life with Rheumatoid Arthritis.
That definition sums it up for us. When we can’t open our hands, bend our knees or barely walk because of pain, don’t think that’s us pretending. Pain, pain and more pain this is what our lives are comprised off. Too many places to pinpoint and too many places to say which one is hurting the most. Because we are crying out in pain is that wrong? Does that mean we are attention seeking or trying to get out of doing things? Not with what we go through each and every day we wake up facing this disease known to us as Rheumatoid Arthritis. It means we are hurting and we are in constant pain, a fact of our lives that can’t be erased no matter what others may think. Continue reading “RA – Pain Where Doesn’t It Hurt-It’s Real”
Feeling the pain and fatigue, what do you do! What can you do! Does anyone really understand what it’s like to be a prisoner to a disease that will never let you go. That disease, Rheumatoid Arthritis.
Take a look at us, we all have different looks. Some of us look perfectly normal, some of us semi normal, some of us have deformities, some of with canes and walkers, some of us in wheelchairs and some of us even bedridden, so our looks with this disease comes with many faces. Faces in pain, faces with tear stains, faces with fake smiles, faces of frustration, faces showing fatigue, faces of confusion, faces of loneliness and faces of hope. There can be so much misunderstanding about what we should look like when we have a chronic disease but our faces may not tell our true story.
Do people really get that for many of us we may not have the physical disabilities but we are suffering with the aches and pains in our joints that leaves us bound to a life with painful movement causing us to stay in one place more than we want to. Simply because our looks can be deceiving, we end up facing enormous backlash from those who tend to believe we are liars looking for sympathy playing games with an awful illness. In reality seeing who we are may not show what we are “a person living in pain each and every day”. A pain that cannot be measured in numbers because the levels sometimes don’t go that high. A pain that you can’t describe because it’s not like anything you’ve felt before. A pain that scares you so much but you’re even more afraid to share with those in your life because they just won’t understand or they might be afraid they’re losing you. This is what Rheumatoid Arthritis does to its victims. You just don’t know.
Is it understood what kind of sadness and depression we face daily because our abilities have been stolen from us. Does anyone understand what it’s like being unable to live a normal life. A life born to live to its highest but can be taken to its lowest by this disease we have, Rheumatoid Arthritis. We never knew we would be trying so hard to put one foot in front of the other while trying to figure out where that would lead us. We know where we want to go and what we want to do but so many of our wants have been slowly ripped out of our lives. The few times we may get lucky enough to do some of these things, we pay the price for it later. Our bodies cry out in pain as we cry along with it. We cry because we are happy we were lucky enough to do something we wanted but sad and angry because this is what our lives have come too. Being unable to do simple things bring more pain because if you can’t do simple things then the harder things are simply a hope or a wish. You just don’t know.
When people see us cry and ask why, it’s because we are so overwhelmed with everything that we’re going through. Do they think we’re feeling sorry for ourselves, maybe we are sometimes, we are entitled. The burden we carry each and every day is heavy and at some point we are bound to break. The depression is real, the loneliness is epic, the isolation finds us hiding in rooms alone because explaining our tears so many times fall on unsympathetic and deaf ears. People wonder why we fight this disease alone, it’s because many don’t understand it and don’t want to. It’s not the crippling disease they’ve come to know, so for those who look okay to them, it’s a question of “what’s your problem”. We all find ourselves alone sometimes dealing with this disease trying to figure out how best to function within and outside of our family. We never want to be alone in this battle but we are and it’s no fault of our own. Loneliness and isolation, You just don’t know.
Rheumatoid Arthritis, what is it? Our definition: deceiving, devastating, unpredictable, uncertain, forever changing, damaging, unrelenting, most hated, debilitating, life altering and most misunderstood. True definition: a chronic autoimmune disease in which the body’s immune system which normally protects its health is by attacking foreign substances mistakenly attacks the joints. This is not a simple disease or temporary disease and it is not arthritis but one takes control of our lives and leads us down its path that it has for us. Now we hope that you know and understand our journey just a little bit better.
When you see me, my fingers straight, I don’t limp, I don’t have the assistance of a cane nor am I in a wheel chair, so tell me what do you think. Do I look perfectly normal to you! Do I look as if I can do what any normal person should be able to do! Well I can’t, you see my disease may be invisible but what I’m going through is real and just because you don’t see it doesn’t make it untrue. Yes I may look healthy but I am truly suffering because you see my disease Rheumatoid Arthritis can’t be clearly seen. Continue reading “RA-Because My Disease Maybe Invisible-Does It Make My Suffering Invisible”