Rheumatoid Arthritis wears us out, it wears us down and it takes it toll but through it all we still try our best to be strong. Strength for us is a form of Survival. It helps us mentally to deal with our lives physically. Yet there are those times when we feel like giving up but how do we stay strong in the throes of a disease that so often takes our “strength”, the very thing we need to keep us going. Continue reading “RA – Rheumatoid Arthritis-Strength Our State of Being”
Pain-Physical suffering or discomfort caused by illness. Our definition of daily life with Rheumatoid Arthritis.
That definition sums it up for us. When we can’t open our hands, bend our knees or barely walk because of pain, don’t think that’s us pretending. Pain, pain and more pain this is what our lives are comprised off. Too many places to pinpoint and too many places to say which one is hurting the most. Because we are crying out in pain is that wrong? Does that mean we are attention seeking or trying to get out of doing things? Not with what we go through each and every day we wake up facing this disease known to us as Rheumatoid Arthritis. It means we are hurting and we are in constant pain, a fact of our lives that can’t be erased no matter what others may think. Continue reading “RA – Pain Where Doesn’t It Hurt-It’s Real”
Feeling the pain and fatigue, what do you do! What can you do! Does anyone really understand what it’s like to be a prisoner to a disease that will never let you go. That disease, Rheumatoid Arthritis.
Take a look at us, we all have different looks. Some of us look perfectly normal, some of us semi normal, some of us have deformities, some of with canes and walkers, some of us in wheelchairs and some of us even bedridden, so our looks with this disease comes with many faces. Faces in pain, faces with tear stains, faces with fake smiles, faces of frustration, faces showing fatigue, faces of confusion, faces of loneliness and faces of hope. There can be so much misunderstanding about what we should look like when we have a chronic disease but our faces may not tell our true story.
Do people really get that for many of us we may not have the physical disabilities but we are suffering with the aches and pains in our joints that leaves us bound to a life with painful movement causing us to stay in one place more than we want to. Simply because our looks can be deceiving, we end up facing enormous backlash from those who tend to believe we are liars looking for sympathy playing games with an awful illness. In reality seeing who we are may not show what we are “a person living in pain each and every day”. A pain that cannot be measured in numbers because the levels sometimes don’t go that high. A pain that you can’t describe because it’s not like anything you’ve felt before. A pain that scares you so much but you’re even more afraid to share with those in your life because they just won’t understand or they might be afraid they’re losing you. This is what Rheumatoid Arthritis does to its victims. You just don’t know.
Is it understood what kind of sadness and depression we face daily because our abilities have been stolen from us. Does anyone understand what it’s like being unable to live a normal life. A life born to live to its highest but can be taken to its lowest by this disease we have, Rheumatoid Arthritis. We never knew we would be trying so hard to put one foot in front of the other while trying to figure out where that would lead us. We know where we want to go and what we want to do but so many of our wants have been slowly ripped out of our lives. The few times we may get lucky enough to do some of these things, we pay the price for it later. Our bodies cry out in pain as we cry along with it. We cry because we are happy we were lucky enough to do something we wanted but sad and angry because this is what our lives have come too. Being unable to do simple things bring more pain because if you can’t do simple things then the harder things are simply a hope or a wish. You just don’t know.
When people see us cry and ask why, it’s because we are so overwhelmed with everything that we’re going through. Do they think we’re feeling sorry for ourselves, maybe we are sometimes, we are entitled. The burden we carry each and every day is heavy and at some point we are bound to break. The depression is real, the loneliness is epic, the isolation finds us hiding in rooms alone because explaining our tears so many times fall on unsympathetic and deaf ears. People wonder why we fight this disease alone, it’s because many don’t understand it and don’t want to. It’s not the crippling disease they’ve come to know, so for those who look okay to them, it’s a question of “what’s your problem”. We all find ourselves alone sometimes dealing with this disease trying to figure out how best to function within and outside of our family. We never want to be alone in this battle but we are and it’s no fault of our own. Loneliness and isolation, You just don’t know.
Rheumatoid Arthritis, what is it? Our definition: deceiving, devastating, unpredictable, uncertain, forever changing, damaging, unrelenting, most hated, debilitating, life altering and most misunderstood. True definition: a chronic autoimmune disease in which the body’s immune system which normally protects its health is by attacking foreign substances mistakenly attacks the joints. This is not a simple disease or temporary disease and it is not arthritis but one takes control of our lives and leads us down its path that it has for us. Now we hope that you know and understand our journey just a little bit better.
Having Rheumatoid Arthritis takes away from us more than one can see. It is like the thief in the night that comes in and robs you but is bold enough to rob you in broad daylight. It strips us of the seen and unseen leaving behind pained, confused and fatigued torn lives that we’re trying our best to hold together after being confronted with its wrath. This is how it feels when this disease strikes our lives tearing it apart without warning stealing from us the person we once were forcing us to face just what it can do and can take from us. Rheumatoid Arthritis one of the biggest and busiest thieves we have come to know. One that is constantly on the move who never lets us settle down for peace simply because at anytime it can steal just what it wants from us. Did you turn around one day and your whole life as you knew it had been stolen. My parallel to a Thief. What do you think!!! Continue reading “RA – Rheumatoid Arthritis-The Thief Within”
When you see me, my fingers straight, I don’t limp, I don’t have the assistance of a cane nor am I in a wheel chair, so tell me what do you think. Do I look perfectly normal to you! Do I look as if I can do what any normal person should be able to do! Well I can’t, you see my disease may be invisible but what I’m going through is real and just because you don’t see it doesn’t make it untrue. Yes I may look healthy but I am truly suffering because you see my disease Rheumatoid Arthritis can’t be clearly seen. Continue reading “RA-Because My Disease Maybe Invisible-Does It Make My Suffering Invisible”
When you look in my eyes what do you see
The light has dimmed, Rheumatoid Arthritis has taken over me
I have a disease with a confusing name
One that no one understands, no matter how much I try to explain
My life with RA is so completely Misunderstood
If I could explain it to you better, I surely would
If everyone would accept this is now how I have to live
Then their support and understanding they would freely give
It’s a life that I live because I have no choice
As loud as I speak and cry, I still have no voice
It has affected each and every part of my life
Yes, it is hard, so much toil and strife
Who I once was and who I am now
Is forever changed and I’m still trying to accept it but how
I want to go back to the way I use to be
But this dreadful disease just will not let me
Still I look in the mirror and I stare at myself
I ask what can I do, Lord what else
I’m doing all that I can to be at my best
Still it’s hard for me to relax and get needed rest
I hate you RA and what you have done
You have taken my life and made a run
You left me tired, worn and forever in pain
And struggling to accept that my life will never, ever be the same
I will always long to be free from this terrible disease
Because all I want is Understanding, Peace, Rest and to be at Ease.
From all of us suffering from Rheumatoid Arthritis, a disease that is so misunderstood.
photo credit: kapa65/pixabay.com
How can I explain a life led by Rheumatoid Arthritis. Do I do what I want, can I go when I want OR are these the things that only this disease decide. Silly question, No it is not, so let me try to explain to you why. I can’t hide from it or put it behind me no matter how much I want to. I hate this disease and trying to explain it can be just as painful as the disease itself. Living it is my best Explanation!!! Continue reading “RA-How Can I Explain Rheumatoid Arthritis”
When I was diagnosed with Rheumatoid Arthritis, I didn’t know my life would change the way that it has, still there was so much more about this disease that I just did not know. Each day that I suffer, I learn just a little bit more but never learning all that there is to know about a disease that needs more light shown on it in order to make better progress for those of us who has to live this life. Continue reading “RA – Rheumatoid Arthritis-I Just Didn’t Know”
How does it feel to have Rheumatoid Arthritis? Do you feel overwhelmed, broken, tired, alone, misunderstood, helpless or just plan unhealthy? How does it feel to be someone who has Rheumatoid Arthritis, a chronic and confusing disease that will rule your life until the end. It is a feeling that no one should ever have to feel. Continue reading “RA-How Does It Feel To Have Rheumatoid Arthritis”