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RA AND THE FAMILY FIT

LIFE WITH RHEUMATOID ARTHRITIS

RA – Rheumatoid Arthritis A Disease Simply Not Understood By So Many – Why

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There is an ongoing battle for understanding about Rheumatoid Arthritis and what it really is and what it mean to those of us that have it.  By definition it is described as an auto immune disease that causes pain, stiffness, swelling and loss of function to joints. Um, but those symptoms sound like regular arthritis or osteoarthritis.  Well the key difference here is “auto immune disease”. Continue reading “RA – Rheumatoid Arthritis A Disease Simply Not Understood By So Many – Why”

RA-Look At The Face of Rheumatoid Arthritis

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Look At My Face

Look at my face
Can you see my heart race
As the tears began to flow
For the many things you just don’t know.

Look at my face
Do you see the pain there
Stand by me, take your place
Show me you’re with me and you care.

Look at my face 
Does it show I’m so tired and worn
That I’m really sorry, I know you may need your space
That’s why I am so bitterly torn.

Look at my face
I have a disease I truly hate
One that is always up for constant debate
One that is my destiny, my life, my fate.

Look at face
I’m searching for a kind word
And a little understanding and truth that needs to be heard
If this were so, our reality wouldn’t be so blurred.

Look at my face
Can you see the uncertainty in my life
Though I’m trying day after day to handle this strife.
No matter what I do, I can’t get away from this hateful space.

Look at face
You see I just cannot give in
To this hard and bitter race
Because, as hard as it gets, I can’t let Rheumatoid Arthritis win!

Be Blessed.

 

 

Rheumatoid Arthritis-The Isolation We Face

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Rheumatoid Arthritis, our chronic and complicated disease.  With it comes pain that we feel each and every day.  Pain that fights us as vigorously as we fight it.  Still explaining just how much this causes us seem to go unaccepted and misunderstood by so many causing us to fall into a pit of ISOLATION.  Do you find yourself saying “I feel so alone in this fight” and you have no where or no one to turn to.  This is what so many sufferers of RA have to face, the isolation that comes with having this dreaded disease. Continue reading “Rheumatoid Arthritis-The Isolation We Face”

Rheumatoid Arthritis-Our Incurable Disease

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Hearing those painful words with fear and sadness came with hearing “You Have Rheumatoid Arthritis”.  These two words would change our lives forever but we just did not know how much.  Words that had more power than we thought at the time possible  But this was just the beginning of our of saga with Rheumatoid Arthritis. Continue reading “Rheumatoid Arthritis-Our Incurable Disease”

Rheumatoid Arthritis-Why We Cry

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Rheumatoid Arthritis takes us through a myriad of changes that are physical and mental. We never know from one day to the next what to expect being a sufferer of this disease because any single day may never be the same and the other. Having it makes us vulnerable to the devastation it causes and we know we have to suffer through whatever it throws at us.  This realization brings tears that many may never, ever see because for many of us our tears are shed in secret.  When our tears are seen, there are those who question Why!

When I cry, I wish I could go back to life before Rheumatoid Arthritis
When I cry, I long for what I can no longer do
When I cry, I feel the pain in my body and my mind
When I cry, I feel I’ve lost myself to Rheumatoid Arthritis
When I cry, I want others to Understand the burden I bear
When I cry, It’s because it is all that I can do
When I cry, I’m so emotionally broken
When I cry, I want others to understand why I cry
When I cry, I need loving arms to hold me
When I cry, I want this disease to be UNDERSTOOD 
When I cry, IT’S NOT ALWAYS FOR MYSELF!!

Through the emotional turmoil we face and the tears that come, we have to accept the reality that our lives are forever changed.  We see how we truly are and what this disease has done and can do to us.  We cry for hope, understanding, love and comfort. This is Why We Cry.

Be Blessed.

RA-Dealing With The Effects of Our Medication

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Your head is pounding, your joints are aching, your stomach hurts, your chest is tight, you’re feeling tired and confused, why, all because it’s medication day and you’re dealing with the terrible side effects from the medication you hate you have to take.  All you want to do is lie down but even that doesn’t bring the relief you’re craving.  No one knows just how hard it is to live a life with Rheumatoid Arthritis and suffer from the effects of the medication given to make you better. Continue reading “RA-Dealing With The Effects of Our Medication”

RA-Our Long Journey To Mental Healing When Physical Healing Is Such A Struggle

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Rheumatoid Arthritis, how do we explain it, how do we handle it and how do we cope with it. This dreadful disease that has become a part of our daily lives, our daily being and daily everything.  So how do we cope with Rheumatoid Arthritis, even we can’t always explain it and find it difficult to live with. Continue reading “RA-Our Long Journey To Mental Healing When Physical Healing Is Such A Struggle”

RA -Explaining It-I Just Can’t Do It Anymore

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Warriors are you fed up, worn out and to the point where you’re stressed to no end and feeling you just can’t do it anymore?  IT being anything that others maybe expecting from you or limitations that you’re expected to exceed in spite off  or explaining your day to day struggles though they’re being ignored or rebuked.  It is your time to step back, take a stand and say “I Just Really Can’t Do It Anymore”.  It is time to think about what is best for you and how you manage to cope with Rheumatoid Arthritis and its devastation. Continue reading “RA -Explaining It-I Just Can’t Do It Anymore”

RA-Feeling Defeated Again-When Medication Fails

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That defeating feeling you get when you realize your medication is no longer working.  That feeling that changes you from being sad to sadder forcing you to face the reality that “I’m about to go down this confusing, scary and unknown road one more time”.  How will we ever get our feet on solid ground and is it possible.  We’re feeling defeat one more time in a life with Rheumatoid Arthritis. Continue reading “RA-Feeling Defeated Again-When Medication Fails”

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