RA AND THE FAMILY FIT

Alone with my disease I walk by myself
I feel this way, I have no one else
I know I deserve better still I’m trying my best
I’m running this race constantly seeking rest
The fatigue and pain often getting the best of me
Yet these issues in my life many refuse to see
Still I deserve better because this disease is mine
And it’s sad how many look at me and think that I am fine
But underneath the surface lies the truth of this horrible disease
Many don’t believe me, I’m asking simply please
Learn what it’s like to have your life torn away
By something so destructive leaving you wounded every day
RA can be confusing and so complex for sure
Leaving you with a life you’re forced to bear and endure
Yes, Rheumatoid Arthritis “a disease” not something simple and yet
Most people think so and that, I bet
But as for me, my life has been turned upside down
Leaving me fighting day after day just to stand on firmer ground
So yes, I deserve better just to be understood
Take some time do this, please if you would.
Blessings!

From the time you’re diagnosed with Rheumatoid Arthritis you have been changed. In a physical way and in a mental way. You have yet to really understand the debt of what this all means. Getting RA and hearing those diagnosis is the start of your Journey. Your journey, what has that been like!

I have Rheumatoid Arthritis. It’s not my fault, so why do I feel to blame. Why do I feel bad for being sick. Are you blaming me too! Rheumatoid Arthritis is to blame. Did it chase you away or do you blame me.

I know this sounds really sad but there are many with chronic diseases that have lost loved ones because they have been sick for what some feel “too long or too often”. No, it’s not our fault but we have to suffer the consequences. It’s a sad day when you’re blamed for the times you’re either too sick or just too tired to get out of bed to do anything and sometimes the sad fact that you’re blaming yourself for this. As much as you try, you just can’t bring yourself to put your feet on the floor to make that first move.

Continuing the fight isn’t easy and finding strength when we’re weak physically and mentally somehow does makes us stronger than most give us credit for even though they may never see it. We’re fighting daily just to maintain some normalcy. Normalcy, what does that mean for us! Nothing close to what it use too. Gone are the days of being who we thought we would always be and what we would always be doing in our lives. Sure everyone’s life changes at some point but with RA the changes can be rapid and they can be unexpected and harsh.

I am lonely. How can that be! I sit alone, I lay alone, I go alone, I cry alone so that leaves me alone. Does this sound familiar to you? Well I will tell you, Rheumatoid Arthritis can be a very lonely disease. Just ask some who has this disease and they will tell you it is true.

How can that be I ask again. In reality it’s because you lose love ones, friends, associates and others. They don’t understand this disease and what you’re going through and find they can’t stay around for the long haul. This disease isn’t temporary, it is chronic and real and many just can’t take the Chronic. We of course can’t control RA, it controls us so we’re at its mercy.