Alone with my disease I walk by myself
I feel this way, I have no one else
I know I deserve better still I’m trying my best
I’m running this race constantly seeking rest
The fatigue and pain often getting the best of me
Yet these issues in my life many refuse to see
Still I deserve better because this disease is mine
And it’s sad how many look at me and think that I am fine
But underneath the surface lies the truth of this horrible disease
Many don’t believe me, I’m asking simply please
Learn what it’s like to have your life torn away
By something so destructive leaving you wounded every day
RA can be confusing and so complex for sure
Leaving you with a life you’re forced to bear and endure
Yes, Rheumatoid Arthritis “a disease” not something simple and yet
Most people think so and that, I bet
But as for me, my life has been turned upside down
Leaving me fighting day after day just to stand on firmer ground
So yes, I deserve better just to be understood
Take some time do this, please if you would.
Alone with my disease I walk by myself
From the time you’re diagnosed with Rheumatoid Arthritis you have been changed. In a physical way and in a mental way. You have yet to really understand the debt of what this all means. Getting RA and hearing those diagnosis is the start of your Journey. Your journey, what has that been like!Continue reading “RA-What Has Your Rheumatoid Arthritis Journey Been Like”
I have Rheumatoid Arthritis. It’s not my fault, so why do I feel to blame. Why do I feel bad for being sick. Are you blaming me too! Rheumatoid Arthritis is to blame. Did it chase you away or do you blame me.
I know this sounds really sad but there are many with chronic diseases that have lost loved ones because they have been sick for what some feel “too long or too often”. No, it’s not our fault but we have to suffer the consequences. It’s a sad day when you’re blamed for the times you’re either too sick or just too tired to get out of bed to do anything and sometimes the sad fact that you’re blaming yourself for this. As much as you try, you just can’t bring yourself to put your feet on the floor to make that first move.Continue reading “RA-I Have Rheumatoid Arthritis-Why Are You Walking Away”
I have Rheumatoid Arthritis. I may be broken but I am not invisible. I may not look how I once did but I am still the person I have always been. I may be different in many ways but that doesn’t change who I am. I am still the person I was before Rheumatoid Arthritis entered my life. Yes, I have changed in many ways but look at me, see who I still am!
I have a disease that may have altered many things about me. Maybe my hands, my feet, my weight, my walk or even down to my attitude. I may not be able to do as much as I once could or even as often as I once could. You may not see me smile as much and I may cry a lot more. I may frown more than you like or even more than I like myself but that’s life with Rheumatoid Arthritis. You see RA changes the body and mind in ways that many would never imagine but it does not erase me, I’m still here.Continue reading “RA-Look At Me-See Who I Am-I’m Still Me”
Continuing the fight isn’t easy and finding strength when we’re weak physically and mentally somehow does makes us stronger than most give us credit for even though they may never see it. We’re fighting daily just to maintain some normalcy. Normalcy, what does that mean for us! Nothing close to what it use too. Gone are the days of being who we thought we would always be and what we would always be doing in our lives. Sure everyone’s life changes at some point but with RA the changes can be rapid and they can be unexpected and harsh.Continue reading “RA-Trying To Fight Your Way Back”
I am lonely. How can that be! I sit alone, I lay alone, I go alone, I cry alone so that leaves me alone. Does this sound familiar to you? Well I will tell you, Rheumatoid Arthritis can be a very lonely disease. Just ask some who has this disease and they will tell you it is true.
How can that be I ask again. In reality it’s because you lose love ones, friends, associates and others. They don’t understand this disease and what you’re going through and find they can’t stay around for the long haul. This disease isn’t temporary, it is chronic and real and many just can’t take the Chronic. We of course can’t control RA, it controls us so we’re at its mercy.Continue reading “RA- My Chronic Disease-It Is Really That Lonely”
Hello Warriors. Hope you all are doing well. Do you wake up with feelings of dread. Feeling tired, pain and broken. Does your body seem to have its own agenda. How are you going to make it through the day you’re already wondering!! That is just a few things on our minds when dealing with Rheumatoid Arthritis.
The pain is overwhelming, the fatigue (how can something be so bad), is even worse. How in the world can I get myself going is the question you’re asking yourself. You struggle through because that’s what you’ve become accustomed too. You put one foot in front of the other and you do what you have to because life with RA does not stop for us. But there are those times no matter what, nothing seems to work. The hot showers nor the pain medication seems to get you moving, therefore giving in is our only option at that time. We cannot always win this struggle.Continue reading “RA-How Do You Make It Through A Day With Rheumatoid Arthritis”
As sufferers of Rheumatoid Arthritis, we do all that we can to stop the pain we endure every day but there are those times when the pain get so bad we need help getting through our days. There are the flares that make our pain unbearable so we look for what makes it easier through those tough times and for many of us it’s prednisone. Continue reading “RA-Rheumatoid Arthritis-Fighting To Get Better-What We May Not See”
I have a chronic disease I can’t control
I am forced to fill this horrible roll
I hurt, I cry and sadly have to go along
It is not my fault, I did nothing wrong
The blame I feel is so unfair
It seems no one understands or maybe just don’t care
The guilt just kills me day after day
It weighs me down more than I can ever say
The pain is not fake, my life it can steal
This disease is unimaginable, makes life feel so surreal
Yet I go on because I have no choice
I yell out loud but no one hears my voice
As I desperately try hard to explain
How much this disease causes physical and emotional pain
Yet my heart hurt and my eyes show what I’m going through
With this disease that’s hurting me and you
You see RA does not discriminate and has no shame
It is not me that’s wrong but RA that’s to blame
So as I look for understanding to help ease my way
Say that you’re with me and I hope you mean what you say!
For the many, many warriors of Rheumatoid Arthritis, I understand.