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RA AND THE FAMILY FIT

LIFE WITH RHEUMATOID ARTHRITIS

Month

April 2023

RA-The Women Who Fight The Battle

Being a woman with Rheumatoid Arthritis, I can tell you it is very difficult to say the least. There is so much more for us to deal with than one can image. Let me tell you a little bit about a woman’s struggle with this disease.

As women, we are already above average in getting this disease, imagine what pressure that can put on you. Our hormones are often out our control even when we don’t want them to be but that is the anatomy of being who we are. The hormones that makes us who we are is a part of what puts us more at risk for RA. Along with this comes our guilt of wanting to deal with the pain and suffering of this disease but opting to keep it all to ourselves instead. Often this causes bouts of depression and anxiety which takes its toll. When this happens, there is this overwhelming sense of aloneness because no one understands exactly what you’re going through. You’re fighting RA while being on an emotional roller coaster seeking balance to cope.

It is said women are three time more likely to get RA than men, imagine that. This alone makes us stand out. It is suggested that females have stronger immune system responses than males however a heightened immune responses may also mean females immune systems are more likely to attack healthy tissues, putting them at risk of developing autoimmune conditions such as RA. We are 75% of the patients with this disease. We may have stronger immune systems but it does not make us a lone warrior but adds to our plight. How do women cope!!

Being a mom, wife or a single woman with RA you find that your life doesn’t stop when you are in pain. Women find they have to be strong for themselves and those in her family. She still has to carry on with taking care of so much of everything. There is the neverending pace of making everything right for everyone while hoping to fit yourself in at some point. You find that you are tired, worn out and racked with pain but you donโ€™t stop because that is the nature of the woman.

The psychological aspect is hard because we often give up our self care to keep going for the sake of others. The toll Rheumatoid Arthritis takes on the body weighs heavy on the mind. Guilt is one of our worst enemies because we donโ€™t want to feel like a failure even though our bodies may be failing us in the process. At the end of each day and in the quiet of each night, we maybe suffering in silence from the overload weโ€™ve put in all day. Our work it seems with the pain is never done.

When we find time for ourselves, we sit with the realization of what this disease does to us, what it takes from us and how it dictates our lives. But as women we find strength when there is none and we give in only when we truly have to, yet we still struggle on. This is how it is being a woman with Rheumatoid Arthritis, a true Warrior in the midst of the Odds.

Be Blessed.

RA – Rheumatoid Arthritis-Riding The Waves Of Guilt

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FEELING THE GUILT

Guilt: A feeling of worry or unhappiness.  Something that we deal with time and time again having Rheumatoid Arthritis.  Guilt, does it make you cry your days and nights away?  How can we get someone to understand the guilt we feel when we can’t get them to understand the Disease we have!!!

Having Rheumatoid Arthritis causes us so much guilt because of the limitations brought on for the many reasons associated with it.  Guilt makes you wonder and it makes you cry tears, tears and more tears.  Guilt why does it hurt so much and why does it seem we have so many loose ends while dealing with it.  We feel guilty because we can’t do the many things that we want or need to do.  We feel we are coming up short in so many ways therefore opening the door for the multitude of guilt to walk right in.

Do you find yourself feeling so bad because you want to do all the things you should for your family but you’re unable to because you can’t force yourself to get out of bed some days.  You say to yourself “If I just lay here a little while longer” I will be okay knowing those very words are wishful thinking.  No matter what, you just can’t make yourself move no matter how much you try.  You lay quietly in bed coming to the sad realization of just how bad you are at the moment and how bad you feel because you’re failing at the things you wish so much you could fulfill.  You’re thinking how unfair this is to your family to have to go through this all the while hoping they understand it’s not your fault things are the way they are but the fault of this Disease, Rheumatoid Arthritis.

The guilt you feel can’t be measured by any means.  We are put down time and time again by our pain and our medication.  Still we’re fighting hard against the urges to just curl up in a knot and giving in to the nausea, headaches and dizziness that forbids us to make a move while it happens to us anyway.  When this happens, we are saddled with insurmountable guilt.  Guilt that weighs so heavy on us for being in a position that we have no say in that’s binding our minds in knots of emotional overload.

Through it all we want so much to be able to do things for our family and our love ones but let’s not forget ourselves.  It’s not just others that are missing out due to the effects of this disease, it is Us as well.  It is true we know this is not our fault but it doesn’t make the weight of guilt any lighter.  As we deal with not being able to do the things we want to do, the many times we want to, we are constantly hoping and praying for that distant hope of change.  It is not easy coming to terms with our limitations, still we never give in to defeat or give up trying. 

Our guilt is because we love and wish to do so we feel what we’re perceived as are failures to ourselves and others though realizing it is something that is out of our control and is an ongoing fight and will continue to be so.  Having the opportunity to do the simple things for those we love is a joy that can only be understood by those that are walking in the shoes that fit all of our feet. Though this might sound trivial to many, it is a great task for those dealing with a chronic disease.

As we live with the many emotions that having this disease brings, we are bound to it for a lifetime which means that we will forever be dealing with many emotions. But guilt and isolation have their place etched in our minds reminding us just how lonely and unforgiving Rheumatoid Arthritis can be.  If only we could rise above our feelings of guilt and accept that we are not responsible for the limitations that we now have to live with. But even knowing this does not ease the pain of the guilt we still feel.  It is hard for us to rest our minds no matter how hard we try.  We only wish for understanding of our plight.  We wish that others knew that we deal with pain more than we can say and that brings about our inability to do so many of the things we want or need to do which brings about isolation and guilt. 

Two of the things that we find just as hard to get away from as the symptoms of this disease because if the truth be told, these 2 are also symptoms in an emotional form.  It’s true we are not to blame but it’s true we feel to blame for what Rheumatoid Arthritis has taken from our lives therefore forcing its limitations upon us causing us unbearable guilt.  Guilt is not fair but it is real.

Be Blessed.

Photo credit: noskill/pixabay.com

 

RA – I Can’t Give You 100% Will You Settle For What I Have

With RA we suffer from fatigue, some with depression and a host of other things along with our disease.  It is in these circumstances that we find ourselves struggling to do the many things we have to in a day’s work.

While doing the many things in our daily lives, we are faced with the daunting task of fighting through some of our biggest challenges.  Take a moment, think about it, which is your biggest challenge. 1. pain,  2. fatigue,  3. depression,  4. additional illnesses,  5. loneliness,  6. forgetfulness,  7. sadness,  or 8. all of the above and then some.  We do face many challenges, some we can fight through quickly, some that takes a little bit longer and some that takes quite a while but we face those challenges the best we can.  This is what makes us warriors and makes us strong.

Even though we struggle with Rheumatoid Arthritis, we strive to remain strong even at our weakest. We have conditioned ourselves to believe we have to take care of everyone and everything out of guilt. You see guilt is an emotion that permeate our lives and takes its toll on us making us less than 100% to anyone including ourselves.

Continue reading “RA – I Can’t Give You 100% Will You Settle For What I Have”

RA-Defending Yourself Against A Disease You Can’t Control

Rheumatoid Arthritis, what do you have to say about it. So much it overwhelms your mind. It is a disease of the body that affects your mind. There is no easy way to make people understand just how it is to live with a debilitating disease like RA. One of the many autoimmune diseases that affect so many of us, more women than men by the way.

This isn’t a blog about pity, it is a blog about reality and the reality is, Rheumatoid Arthritis is a disease that changes the lives of people slowly sometimes other times in a more aggressive fashion. Are you prepared either way, No! It moves in and changes everything about your life. Your normalcy is gone forever and what you’re about to learn things many may not even imagine.

You will leave behind what you were accustomed to in life and prepare for the new life RA has in store for you. Life as you knew it will slowly slip away day by day bringing with it an emotional ride you won’t be prepared for. You will learn just how much strength you will need and how much you will come to rely on that strength when your body and mind goes through more than you could imagine. Pain throughout leading you to sadness and emotions that will also change you forever. Being sick and the guilt of being sick from a disease you cannot control is something that others won’t fully understand.

Suffering from Rheumatoid Arthritis takes its toll on us. It is a defining factor in all that we do from the moment we get up until we go to bed. It dictates our days determining whether or not it will be one that we can tolerate or one that puts us into bed. Dealing with the also uncertainty takes its toll and the ups and downs we face cannot be explained fully to those who don’t experience it. It is difficult to explain to anyone how you may be okay one moment and the next at your worst. As unbelievable as that may seem, it is the reality of having an autoimmune disease. We are sick, limited, sad and guilt ridden because we are unable to be the person we were before RA.

Rheumatoid Arthritis is a controlling disease. It controls our pain, emotions, days and dynamics but we continue our fight in this battle. We want everyone to understand we are working against this disease and it dictates what we can and cannot do. Though it doesn’t appear this way, it is our truth. Trying to control RA is an ongoing struggle, one we deal with each and every day. We should not have to defend having a disease we neither want or asked for!!

Be Blessed.

RA – Encouraging Words For the Week – For My RA Warriors

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Don’t let anyone tell you that you are weak; You are so much stronger than you realize.

Be proud of yourself for the strength that you have; It is the one sure thing you know you can count on;

Never, ever give up on yourself; You are your fiercest warrior.

For every step down RA takes you; You can always find your way back up;

Fight for yourself and all that you need; Because no one knows what you need more than you.

Still some days we will surely find difficult; We also know in our hearts we are RA Warriors.

So be strong, keep the faith and keep your fight for yourself ongoing. We are Warriors forever.

Be Blessed

Photo Credit:  Plang Image/FreeImages.com

RA – Getting Rheumatoid Arthritis-Is This Your Story

Seeing how something can control your life is not what we expected but along came this terrible disease to rewrite our dreams and expectations setting us on a path that will forever alter all of our expectations.

When you think back over the years before your Rheumatoid Arthritis diagnosis, do you remember where you came from to where you are now.ย  Tell me how do you feel!ย  Do you miss that old you and all that came so easy in your life before?ย  Yes, this is how we all got started!

A simple life maybe, but now it has been affected by a disease that has snatched away our normalcy and replaced it with uncertainties, frustrations, pain, isolation and so much more. Some things that we will never be able to get those in our lives to really understand or accept.ย  A disease that changes us daily as we do our best to accept and cope with our circumstances. Continue reading “RA – Getting Rheumatoid Arthritis-Is This Your Story”

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