September 2020

RA-Having Rheumatoid Arthritis-I Deserve Better

Alone with my disease I walk by myself
I feel this way, I have no one else
I know I deserve better still I’m trying my best
I’m running this race constantly seeking rest
The fatigue and pain often getting the best of me
Yet these issues in my life many refuse to see
Still I deserve better because this disease is mine
And it’s sad how many look at me and think that I am fine
But underneath the surface lies the truth of this horrible disease
Many don’t believe me, I’m asking simply please
Learn what it’s like to have your life torn away
By something so destructive leaving you wounded every day
RA can be confusing and so complex for sure
Leaving you with a life you’re forced to bear and endure
Yes, Rheumatoid Arthritis “a disease” not something simple and yet
Most people think so and that, I bet
But as for me, my life has been turned upside down
Leaving me fighting day after day just to stand on firmer ground
So yes, I deserve better just to be understood
Take some time do this, please if you would.

RA-What Has Your Rheumatoid Arthritis Journey Been Like

From the time you’re diagnosed with Rheumatoid Arthritis you have been changed. In a physical way and in a mental way. You have yet to really understand the debt of what this all means. Getting RA and hearing those diagnosis is the start of your Journey. Your journey, what has that been like!

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RA-I Have Rheumatoid Arthritis-Why Are You Walking Away

I have Rheumatoid Arthritis. It’s not my fault, so why do I feel to blame. Why do I feel bad for being sick. Are you blaming me too! Rheumatoid Arthritis is to blame. Did it chase you away or do you blame me.

I know this sounds really sad but there are many with chronic diseases that have lost loved ones because they have been sick for what some feel “too long or too often”. No, it’s not our fault but we have to suffer the consequences. It’s a sad day when you’re blamed for the times you’re either too sick or just too tired to get out of bed to do anything and sometimes the sad fact that you’re blaming yourself for this. As much as you try, you just can’t bring yourself to put your feet on the floor to make that first move.

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RA-Finding Yourself Through Rheumatoid Arthritis With Your Limits

Fellow warriors, how are you all doing? My hope is that you’re doing alright. That being said, by having Rheumatoid Arthritis it is such a trying thing and is filled with so much uncertainty, pain and confusion. Do you ever find yourself working beyond your limit. Trying to fill in the gaps that you feel have been left because you were unable to do as much. At some point in your illness do you want to just throw up your hands because of your frustration.

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RA-Look At Me-See Who I Am-I’m Still Me

I have Rheumatoid Arthritis. I may be broken but I am not invisible. I may not look how I once did but I am still the person I have always been. I may be different in many ways but that doesn’t change who I am. I am still the person I was before Rheumatoid Arthritis entered my life. Yes, I have changed in many ways but look at me, see who I still am!

I have a disease that may have altered many things about me. Maybe my hands, my feet, my weight, my walk or even down to my attitude. I may not be able to do as much as I once could or even as often as I once could. You may not see me smile as much and I may cry a lot more. I may frown more than you like or even more than I like myself but that’s life with Rheumatoid Arthritis. You see RA changes the body and mind in ways that many would never imagine but it does not erase me, I’m still here.

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RA-Trying To Fight Your Way Back

Continuing the fight isn’t easy and finding strength when we’re weak physically and mentally somehow does makes us stronger than most give us credit for even though they may never see it. We’re fighting daily just to maintain some normalcy. Normalcy, what does that mean for us! Nothing close to what it use too. Gone are the days of being who we thought we would always be and what we would always be doing in our lives. Sure everyone’s life changes at some point but with RA the changes can be rapid and they can be unexpected and harsh.

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RA-Understanding It’s Okay Not To Be Okay

Hi Warriors. How are you doing? Hope you all are doing well. I’m sure you’re doing your best to be okay while fighting this disease we have to deal with every day, Rheumatoid Arthritis. Even if you’re not doing your best today, don’t feel it’s your fault.

You know, it’s okay not to be okay. We can’t always be our best because we don’t control what happens a day in our lives with RA. Maybe if we take time and look at things that way, we would save ourselves a lot of guilt. The guilt of being burdened with this horrible disease. We can’t dictate our pain and demand our bodies to be okay. We have to learn to accept that no matter how much we try to control Rheumatoid Arthritis, it controls us and we almost always go where it takes us. We have to accept that it’s not our fault that we are not always okay to do what is expected of us when it’s expected of us. The guilt of that needs to be left behind.

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