Hearing those painful words with fear and sadness came with hearing “You Have Rheumatoid Arthritis”. These two words would change our lives forever but we just did not know how much. Words that had more power than we thought at the time possible But this was just the beginning of our of saga with Rheumatoid Arthritis.
Just as we were attempting to adjust to our lives with this new revelation, little did we know how hard it would be facing the devastating affects that comes with having this disease. The hurt, pain, medication, isolation, lack of support and understanding is just the beginning of our journey. Hurt from those that don’t understand, pain both physically and mentally, isolation because many slip away and the medication that will take us on its own journey. With these things, life as we knew it will be forever changed.
Our battle with RA has just began and it is taking its toll on us emotionally. Finding out you have a disease that cannot be cured is devastating but learning what it will take to manage it is more than we’re able to process. The questions can’t come fast enough and the answers confuse us. Medication is the answer but which one confuses us even more. You rely on the doctor to help you figure it all out because the doctor knows more. Getting your medication comes with it own issues and that is where the rocky ride really begins.
What about your medication is there to like. It saves your life or so we think or hope. It slows the progression of our disease but the road to protection is filled with so much pain and uncertainty. We are often left wondering how can something that makes us so sick be something that is suppose to make us better. It is true it may make the pain go away but many days we may be left lying in bed unable to move because we are too tired to do anything else. Maybe we feel it’s not working at all but we may have to give it a chance but how much longer can we last feeling sick as a dog. We’re left wondering is it worth saving ourselves from RA feeling this way. We end up weighing our options but the truth is, this disease is no joke. It can kill. It is chronic and it is not going anywhere. Left untreated it only gets worse and life with it only gets worse.
What are our options with this disease. Do we suffer with the effects of it and seek no treatment or seek treatment and realize it does its job. But finding the right fix is the key. The truth is, more than likely we will always suffer from the side effects of our medication. We will think about the bad side effects, worry about them and think about RA and worry about it. In the end, the decision to do what is best is up to us. Rheumatoid Arthritis can be deadly so we don’t have the option to play around with it. It leaves us in pain, sick, swollen, tired and emotional but for many there’s so much more.
For us comes everything is chronic just like RA. Chronic days of pain, fatigue, hurt, sorry and loneliness. Losing love ones, others in our lives, jobs, abilities and the person we use to be is something we deal with chronically. There’s hardly a day that goes by when there isn’t something that we have to deal with and more piled on It is what makes our lives chronic.
Rheumatoid Arthritis or Rheumatoid Disease, is truly misunderstood. It’s not just a painful, aching condition that comes and go. It is a devastating autoimmune disease that affects us from the inside out. It can literally rob us of our lives. It pains us day and night, robs us of our sleep, robs us of our abilities, inflames us from joint to head, tires us out, messes with our blood and weakens us physically and mentally. To top it off, the joint damage is irreversible. Is it fierce, yes it is.
So you see, what we have is incurable and it is something that we will have to live with for the rest of our lives. Where will we find the strength to go on, we don’t know how but we will, though difficult.