LIFE WITH RHEUMATOID ARTHRITIS HAS NO SET RULES. IT IS FILLED WITH UNCERTAINTIES AND STRUGGLES. HOW DO WE MAKE IT IN A LIFE THAT TEETERS ON THE EDGE OF PAIN, FATIGUE AND SO MUCH MORE THAN WE EVER THOUGHT POSSIBLE!!!!
Is it hard for you to explain how you’re not yourself anymore now that you have Rheumatoid Arthritis
Do you find that you are constantly searching for ways to let others know just what Rheumatoid Arthritis is and what it’s doing to you
But are you tired of trying to explain it and showing what this disease is as it falls on deaf ears
Are you always dead tired and just can’t seem to go on no matter what even though you try with all of your might
Is your whole body wracked with unrelenting pain day after day and night after night
Do you try in vain to do what you know you can’t do but you still try anyway
Have you felt the need to give up and never fight this disease anymore
Are you letting the guilt leave its mark on you as it eats away at your mind
Have you cried out time and time again hoping your tears would bring some comfort and understanding
Have you wished those tears would wash away this disease and all of its ugliness
Have you watched yourself lose yourself in the blink of eye while watching in disbelief
Have you come to terms with this disease that reaches every part of your life and those in it
Have you asked yourself why can’t people understand this life that you are forced to live
Have you shut down your mind to all that brings heartache and pain when all you need is love
Do you feel you’re at the end of your rope and you’re barely hanging on
But, do you realize you’re not alone in this because Rheumatoid Arthritis doesn’t discriminate, it hates us all!!
I say at some point in our fight with this disease, we’ve all felt this way because having a chronic disease is something that is very hard to come to terms with. Through the toughest pain, the worst fatigue and glaring misunderstanding our fight continues. Though many don’t get it, we live with RA and we ask for understanding, patience and support because we did not find this terrible disease that changed our lives, it found us.
August 13, 2018 at 7:34 pm
There’s another side to rheumatoid arthritis, the attitudes of employers, the second i told my boss that I had rheumatoid arthritis she told me to find another job. It didn’t matter that the doctors found it early and were promising that once the medication took effect that I would be back to normal. Employers think that you are going to off sick a lot if you have RA and are therefore automatically unfit for work.
August 14, 2018 at 12:00 am
You are right about that. No one truly understands this disease especially if they don’t have it and that include family members. You can say how much you hurt all of the time and they will say you just said that last week and so on so it makes it hard for us. The only way an employer will understand is if they have a family member that suffers from something chronic. The odd thing that works for me when I try time and time again to explain RA, I say it’s like Lupus and they seem to get. That’s a shame for us though. I truly wish you the best with your job situation and God Bless you.