Do those in your life really know the extent of this disease that we have or have they turned a blind eye to our truth.  Is it as with most things where it takes someone famous to bring our truth to light.  No, it shouldn’t happen this way and we should be heard at all times simply because we know our own truths, not when it’s known to happen to someone that most people know and love to some extent.  This is when we get “Oh that’s the disease that you have”.  We’re glad for the recognition but not that it may only be a temporary thing until the sympathy wears off.  It needs to be etched in everyone’s mind always, just like we have to live with RA, always.  Let me just say, this blog is not to scare anyone or depress anyone, it is our truth that’s just not talked about and I thought this was the perfect opportunity to do it while it maybe fresh on everyone’s mind.

We’re all living with Rheumatoid Arthritis and the many unknowns that comes with it but I ask, “Are You Afraid of the Unknown”. I know we deal with a lot having this disease and we know at anytime there could be something unknown that comes our way but I’m curious to know whether or not, are there those of you who secretly fear what this disease can do you.  I know we all worry about it in some fashion but what about some of the things we don’t talk much about, the really, really serious side of our disease.

Seeing that Glenn Frey (so sorry for his loss) died lately from complications of RA and of course other issues,  I wonder did this bring forth any thoughts that may have been hidden just below the surface regarding the fear of the unknown. But  I must say, in all honesty, the fact that it was even mentioned that Rheumatoid Arthritis was a part of his cause of death is a surprise because all that we see on television regarding our disease are the commercials that show how well the medications work and how quick we bounce back to health once we take them.  Maybe this will shed some light on the fact that our disease does cause serious complications and possibly death.  This unfortunately is our truth. So has this brought out any fear that may have been there just under the surface or are you one of the ones that has always faced these facts head on or even still, do you not let this worry you.  It is my hope that it is the latter but still being realistic.

I myself try not to dwell on it and I must say I’ve done quite well with that but in reality there are things that this disease can cause that could potentially be very dangerous to us as sufferers and this is what others should understand and know about it.  Maybe this is the elephant in the room as the old saying goes but I wonder if this is another worry that we suffer that those we love and are in our lives may or may not know or realize.  But are you secretly hiding that you are afraid of this disease and what it could mean for you and you won’t discuss that for the same reasons we’re being forced to stop explaining our disease “period” because of lack of understanding.

As I stated, I try not to worry so much about the serious complications because it can really stress us out but it is my reality and our reality and this is why we work so hard to try to stay ahead of these issues by taking our medication.  Even though our medications can also contribute to some of these complications, we are left with the decision to do what we feel is in our best interest.  While there are those who think our disease is just aches and pains,  please know we are saddled with something so much more than that, something that can take away our lives.  And for you who think we are being petty, complaining or anything you find useless, we are here to say, we are dealing with a disease that can cause us problems with our eyes, skin, lungs, kidneys and above all our heart and more and this does not include what a lot of people feel is our problem, our joints.

My hope is that we are not dwelling on what maybe or what could happen.  Believe me I am not being cavalier about this issue, I am being very sympathetic because it is my issue as well.  I want peace of mind for each of us as we struggle to keep up with what this disease brings into our lives.  I also want those who do not understand our struggle to learn what we have is not just an ordinary disease but a disease that is devastating and one that can possibly lead to some very serious consequences.  At the end of the day, it is the truth that our fight is not a subtle fight but a fight for understanding, support and possibly for our lives.  This is to make people aware that what we have is not as simple as they may think or how they understand it to be and definitely not as simple to fix as it is shown on television.  It is a serious chronic disease that has no cure and will never end.

Be Blessed

Photo credit: glady/