Our dream for our lives is to never have gotten Rheumatoid Arthritis but we did, so this is how it goes. Do you ever feel that you’re never going to stop hurting? Do you go through your day and realize you can’t remember the last time you felt good or the last time you felt normal. Or should I even say as normal as that would be in a life with Rheumatoid Arthritis. Is this how your life is going? It doesn’t take long to answer this question, I know, this is my life too.
As I sit writing this blog, my hands hurt the most but while dealing with this pain it motivates me to write to all of the warriors to let you know: I know what you’re going through and I feel the pain that you feel, maybe not as bad as you do all of the time but your pain is my pain and my pain is your pain. We all suffer with it and we all wonder “Is there ever a break for us”.
It’s amazing how in our lives we’ve become so accustomed to the days in which we have to find a way to manage the pain in order to carry on with the things we have to do daily while silently praying the pain would just go away. This has become our norm, finding a way to keep our resolve when we are worn out and and feel almost defeated by our continued fight with this disease. The days when there isn’t much pain or no pain is a rarity for the majority of us but when we do have those precious moments we’re almost afraid to acknowledge it for fear they can’t actually be real. This is what this disease does to us, this is what we go through. When I had those days, my mind actually played this crazy trick on me in which it had me thinking “Do I really have RA”. That was the game it played on me in the past, now it’s as real as it’s always been. My pain is with me always and I no longer wonder about the diagnosis. I realize being pain-free is a treasure that we only get to experience every now and then but still we are often hoping, wishing and praying for that rare treasure.
Our lives are filled with so much pain all of the time and to gain just a little bit of freedom from it is one of the things that we want so much. To have the joy of a day filled with the least of what this disease offers is an ultimate goal of ours. Having to deal with the pain and all of the uncertainties of Rheumatoid Arthritis keeps our focus directed in so many different ways. Wondering what to expect next but knowing whatever else might be going on, it is certain the pain will be a constant. A constant that we can neither hide or ignore in our plight to make our lives seem somewhat normal in hopes of being strong for our families even though we maybe at the brink of our worse. A break from the pain is what we all want and need and it is truly rare to get those moments but when we do, we find that we punish ourselves unknowingly by trying to fit everything we want and need to do into that time and end up facing the monster which can then be fiercer. So no matter how we do it, we are at the mercy of the pain from Rheumatoid Arthritis and all of that it offers.
So as we struggle in our journey, we not only work for moments of being pain-free but for time of getting it right for longevity of being pain-free. But our ultimate goal and hope is that one day each of us is forever rid of this disease whether in remission or permanently. While we strive for the best fit for ourselves, we take on this disease with vigor and that is for the best outcome that we can possibly get. Can we adjust to the constant reminder which is Pain? No we can’t and we never will because it is so unpredictable, never ever being the same.
Be Blessed
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Be Blessed.
RA AND THE FAMILY FIT 
October 30, 2015 at 6:46 pm
That is so true and so well said. Thankyou! I might have my hubby read this .
Take care
Jennie Schlumpberger (from MyRAteam)
Sent from my iPod
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October 30, 2015 at 9:21 pm
Thank you again Jennie. So nice to see that you’re still checking in. I think that will be a terrific idea. Let him see it from another person’s perspective. It’s always so hard for us in so many different ways. Wishing you the best always. Blessings.
October 31, 2015 at 3:44 am
I appreciate my very understanding and caring wife and the good days. I am so lucky that somehow my brain blocks out the bad days, my wife wishes hers would too.
October 31, 2015 at 1:53 pm
It’s wonderful having understanding and support and your wife is a Blessing to you. It’s gets really hard for everyone when the pain is so constant and never ending. It takes a toll on everyone as well. I do understand and that’s why I blog to reach the other side who might not understand or just to give them a boost of support who does get it to let them know as well they’re not alone. Blessings to you and thank you for reading my blog.
November 6, 2015 at 2:41 am
Hi I’m Chris new to your blogs (that I so relate to & read All the time!) but like the rest of You not new to living with Rheumatoid Arthritis. I was diagnosed at age 11 & am now 52, I did go into remission for several Wonderful years & then when i had our 2 boys. Felt Wonderful during & after both pregnancies! But when it came back it came back with a vengeance! ! What this disease has not only done to my body but my mind & my Entire life only those of us going through it can Truly Understand. I do have to say I’m commenting on this post because it has to deal with the pain WE live with on a daily basis & the last 2 years of my life have been Horrible!! My Dr’s are retireing 1 after the other & we have been together for over 30 yrs, now I cannot seem to find a Dr. that understands the pain. None of us want to have our bodies dependent on our pain meds !! To have a life I have to take them, I’ve been through 4 withdrawals in as many months, something that has NEVER happened since I was 1st diagnosed!!!
I have asked why they would do this to me didn’t our Dr’s take oaths to care for their patients?? On Monday I will see my 3rd new primary, I am so tired of this & sure hope this will be by last for a very long time!!!
If anyone is wondering YES I have tried it ALL to take the pain away or at least dull it , including ALL the RA meds & I do not get Rituxan infusions because I enjoy All the side effects. Sorry! I’ve just Never been here in my dieases process & am feeling Very Lost ….
Thank You for letting me get this out & I Sure Wish You All Happy Pain Free Days!!! Gentle Hugs to you All …..
Chris
November 6, 2015 at 3:15 am
Hi Chris and thank you first of all for taking the time to read my blog. I do this because I want others to understand what we go through on a daily basis. You are right, no one really understand what we go through except those of us who are unfortunately enough to have this disease. The bad thing is when you’re sick all of the time, you lose people along the way for many reasons. Some think we’re complaining or being lazy or whatever but they should walk a day in our shoes and they would get it. I’m so sorry for the very difficult time that you’re having and even I can’t say that I know what you’re going through because my RA isn’t that bad but I do know that what you’re saying is very real. I truly wish you the best and I truly hope that you find another good doctor and you all can find something that can really help you out. I will pray for relief for you and for peace of mind. It is a tough road to walk but as hard as it is, we still do all that we can to walk it. God Bless you.