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RA AND THE FAMILY FIT

LIFE WITH RHEUMATOID ARTHRITIS

RA-Rheumatoid Arthritis-A Warrior’s Fight

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PAIN, FATIGUE, MISUNDERSTANDING, MEDICATION, SLEEPLESSNESS AND FOGGY BRAIN

Rheumatoid Arthritis how do I handle what you’ve done to my life
You’ve dragged me down, almost drowned me with all of your inflaming strife

Still so much to learn but you have made me wise
Changing from day-to-day so many plans to devise

Day in and day out there’s depression and so much anger
Here I am crying, tossing and turning, fearing my life is in danger

I long for peace, quiet and rest for my roving mind
My body needs a break from the constant painful grind

I’m medicated so much sometimes I can’t even think
It makes me wonder will they ever find the missing link

I’m so worn out and I’m just too darn tired
And I don’t know what to do, I feel like my body is being rewired

My fight to stay strong is a fight every day
I’m fighting when I’m up and when I’m down and in every way

Some days I want to give up but I just won’t give in
How can I give up this fight and let you win

You’ve already stolen my time, my abilities and my joy
Also my family, friends and job you aim to destroy

I tried my best to head you off from the very start
But you’ve managed to hang on in your effort to tear me apart

So where do I go and what do I do
How do I sustain with a Monster like you

I guess I will continue to fight and do what I can
To control you Rheumatoid Arthritis and hope others understand

That this battle with you is harder than word can ever express
My weary mind and battered body can surely attest

To what it’s like to fight to stay ahead
With a disease like you that I face every day with dread

Though many don’t understand and many never will
How debilitating you are and how my life you managed to steal

Finally RA, I hate you with ever fiber of my aching being
But these words to you from me should be, but they aren’t very freeing.

Rheumatoid Arthritis our debilitating disease, one that so many people do not understand and do not know how much and how often we suffer.  This is our journey.

Be Blessed.

 

 

 

 

 

 

 

 

 

 

RA-Rheumatoid Arthritis-You Can’t Imagine My Pain

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Rheumatoid Arthritis do people really know what this disease is and what it does to those who suffer with it? You and I do. It is painful, painful, painful. No one can imagine our pain.

Continue reading “RA-Rheumatoid Arthritis-You Can’t Imagine My Pain”

RA-Rheumatoid Arthritis, My Fate-My Foe

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I’ve lost my identity to Rheumatoid Arthritis.  Yes I see myself and I may look the same but in reality I’m not the same.  This disease has me asking “Who Am I” and how do I come to accept the person that disease has made me.  It’s hard but I will.  My Fate My Foe!! Continue reading “RA-Rheumatoid Arthritis, My Fate-My Foe”

RA – Rheumatoid Arthritis-Grieving For That Old You

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You look at yourself in the mirror, you may smile or you may break down and cry.  You smile because you may want to see yourself as you’ve always been but you may shed tears because you know that you’re no longer that person anymore and never will be again when it comes to doing all that you once could before Rheumatoid Arthritis came into your life.  That person staring back is not the person who you once were but a silhouette of  that person so you find yourself grieving for the “YOU” that’s lost to a disease that haunts you and those in your life in a way that you were never in a million years prepared for.  You hug yourself in an effort to reassure yourself that everything is going to be okay but in reality you know that your life is in for a tough go and it has been forever changed and will never be okay the way it use to be.  How quickly did this disease snatch your old life away and set in motion grief and guilt that weighs on you because you can’t live life the way you once could and the way you want too.  Where have I gone? Continue reading “RA – Rheumatoid Arthritis-Grieving For That Old You”

RA-Having Rheumatoid Arthritis-Listen Our Words Have Power

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Words have power but for us, those words can change who we are. As sufferers of Rheumatoid Arthritis it’s not always easy for us to put our feelings into words nor is it always easy to share what we’re going through each and every day. With this comes a myriad of emotions for why this is happening to us and why we wish this should never be.  Talking about our disease is never easy but being able to should never be the issue we have to deal with.  Why should we have to figure out a way make those in our lives understand that our disease is a real disease and not something in our head, something made up or something exaggerated.  It is a devastating life long auto immune disease that will always be a changing disease but can we keep trying to make people understand when their ears are closed, their eyes are shut and their minds are blank when it comes accepting to how this disease affects us. Continue reading “RA-Having Rheumatoid Arthritis-Listen Our Words Have Power”

RA – Rheumatoid Arthritis-Strength Our State of Being

force-2483944_640Rheumatoid Arthritis wears us out, it wears us down and it takes it toll but through it all we still try our best to be strong.  Strength for us is a form of Survival.  It helps us mentally to deal with our lives physically.  Yet there are those times when we feel like giving up but how do we stay strong in the throes of a disease that so often takes our “strength”, the very thing we need to keep us going.  Continue reading “RA – Rheumatoid Arthritis-Strength Our State of Being”

RA – Pain Where Doesn’t It Hurt-It’s Real

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PAIN

Pain-Physical suffering or discomfort caused by illness. Our definition of daily life with Rheumatoid Arthritis.

That definition sums it up for us. When we can’t open our hands, bend our knees or barely walk because of pain, don’t think that’s us pretending.  Pain, pain and more pain this is what our lives are comprised off.  Too many places to pinpoint and too many places to say which one is hurting the most.  Because we are crying out in pain is that wrong?  Does that mean we are attention seeking or trying to get out of doing things?  Not with what we go through each and every day we wake up facing this disease known to us as Rheumatoid Arthritis.  It means we are hurting and we are in constant pain, a fact of our lives that can’t be erased no matter what others may think. Continue reading “RA – Pain Where Doesn’t It Hurt-It’s Real”

RA-Rheumatoid Arthritis-You Don’t Know

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Feeling the pain and fatigue, what do you do! What can you do! Does anyone really understand what it’s like to be a prisoner to a disease that will never let you go.  That disease, Rheumatoid Arthritis.

Take a look at us, we all have different looks.  Some of us look perfectly normal, some of us semi normal, some of us have deformities, some of with canes and walkers, some of us in wheelchairs and some of us even bedridden, so our looks with this disease comes with many faces.  Faces in pain, faces with tear stains, faces with fake smiles, faces of frustration, faces showing fatigue, faces of confusion, faces of loneliness and faces of hope.  There can be so much misunderstanding about what we should look like when we have a chronic disease but our faces may not tell our true story.

Do people really get that for many of us we may not have the physical disabilities but we are suffering with the aches and pains in our joints that leaves us bound to a life with painful movement causing us to stay in one place more than we want to.  Simply because our looks can be deceiving, we end up facing enormous backlash from those who tend to believe we are liars looking for sympathy playing games with an awful illness.  In reality seeing who we are may not show what we are “a person living in pain each and every day”.  A pain that cannot be measured in numbers because the levels sometimes don’t go that high.  A pain that you can’t describe because it’s not like anything you’ve felt before.  A pain that scares you so much but you’re even more afraid to share with those in your life because they just won’t understand or they might be afraid they’re losing you. This is what Rheumatoid Arthritis does to its victims. You just don’t know.

Is it understood what kind of sadness and depression we face daily because our abilities have been stolen from us.  Does anyone understand what it’s like being unable to live a normal life.  A life born to live to its highest but can be taken to its lowest by this disease we have, Rheumatoid Arthritis. We never knew we would be trying so hard to put one foot in front of the other while trying to figure out where that would lead us.  We know where we want to go and what we want to do but so many of our wants have been slowly ripped out of our lives.  The few times we may get lucky enough to do some of these things, we pay the price for it later.  Our bodies cry out in pain as we cry along with it.  We cry because we are happy we were lucky enough to do something we wanted but sad and angry because this is what our lives have come too.  Being unable to do simple things bring more pain because if you can’t do simple things then the harder things are simply a hope or a wish.  You just don’t know.

When people see us cry and ask why, it’s because we are so overwhelmed with everything that we’re going through.  Do they think we’re feeling sorry for ourselves, maybe we are sometimes, we are entitled.  The burden we carry each and every day is heavy and at some point we are bound to break.  The depression is real, the loneliness is epic, the isolation finds us hiding in rooms alone because explaining our tears so many times fall on unsympathetic and deaf ears.  People wonder why we fight this disease alone, it’s because many don’t understand it and don’t want to.  It’s not the crippling disease they’ve come to know, so for those who look okay to them, it’s a question of “what’s your problem”.  We all find ourselves alone sometimes dealing with this disease trying to figure out how best to function within and outside of our family.  We never want to be alone in this battle but we are and it’s no fault of our own.  Loneliness and isolation, You just don’t know.

Rheumatoid Arthritis, what is it?  Our definition: deceiving, devastating, unpredictable, uncertain,  forever changing, damaging, unrelenting, most hated, debilitating, life altering and most misunderstood.  True definition:  a chronic autoimmune disease in which the body’s immune system which normally protects its health is by attacking foreign substances mistakenly attacks the joints.  This is not a simple disease or temporary disease and it is not arthritis but one takes control of our lives and leads us down its path that it has for us.  Now we hope that you know and understand our journey just a little bit better.

Be Blessed.

 

RA – Rheumatoid Arthritis-The Thief Within

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Having Rheumatoid Arthritis takes away from us more than one can see.  It is like the thief in the night that comes in and robs you but is bold enough to rob you in broad daylight.  It strips us of the seen and unseen leaving behind pained, confused and fatigued torn lives that we’re trying our best to hold together after being confronted with its wrath.  This is how it feels when this disease strikes our lives tearing it apart without warning stealing from us the person we once were forcing us to face just what it can do and can take from us. Rheumatoid Arthritis one of the biggest and busiest thieves we have come to know.  One that is constantly on the move who never lets us settle down for peace simply because at anytime it can steal just what it wants from us.  Did you turn around one day and your whole life as you knew it had been stolen.  My parallel to a Thief.  What do you think!!! Continue reading “RA – Rheumatoid Arthritis-The Thief Within”

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